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Petition now over 24,000.

There is a petition asking for these draft Guidelines to be amended, which I think is hugely important.They are getting close to the 25k target of signatures...

Skimming through the paper it does not seem to look at low dose opiate patches, which can be very effective for long-term chronic pain, according to the pain clinic consultant. These include patches, which release 5 microgram/hr of buprenorphine, over 7 days.

I think it is a great idea to have such a flexible part-time paid role. It could be really encouraging for someone. It is likely that the person will end up contributing far more hours than those that are paid.

I guess the MERUK report will be one of Cort's first pieces.

It looks like they needed to have pledges of £7.5k to be eligible for the BIG GIVE in December, where they hope to reach £30k "We are hoping to reach a target of £30,000 in total which will help finance the campaign in 2021/22. The Big Give Christmas Challenge specialises in helping charities...

Sounds interesting! Am sure there must be someone who'd be good for this. I would be happy to do reports from London or Bristol conferences, if there is someone who is interested but can't travel.

Yes, I have a few. Will do this later. It's a shame that the one signed by our very own Graham is the one I've highlighted and annotated.

I saw the whole programme and it was good to see EDS taken seriously. The main "treatment" outcomes for this lady were to have a permanent feeding "tube" inserted, so that she stops losing weight and physio to aim to strengthen muscles to reduce dislocations and pain. She was also grateful that...

It does however provide a somewhat rambling summary of their current "treatment approach" and the psychs false illness beliefs which form the basis for them.

Great letter @PhysiosforME

Was this something you were considering @adambeyoncelowe?

Sadly I read somewhere that the incidence of amputations (leg or part leg) had significantly increased recently, due to peopel not able to get adequate nursing care for them during lockdown). I am not sure any online CBT would have helped with that.

Background on REDUCE: https://bmjopen.bmj.com/content/bmjopen/8/5/e019865.full.pdf

That is a very scary photo :blackalien::blackalien::blackalien:

Does anyone have the time, capability and energy to work out how much EC, Trudy C and other offenders have wasted on BPS in the last 10 or 20 years. It could be very useful info, when people from the PSP steering group approach NIHR to discuss research priorities. The flaws in the studies and...

The survey is presumably a response to the d(r)aft Guidelines, designed to be drawn up, completed over two week period, ie 31st Aug, and then analysed for results to be submitted by the consultation deadline of 14 Sep. I think it is well worth noting things you want to add as you go through, so...

Neil Harrison is now at Cardiff Uni. https://www.cardiff.ac.uk/people/view/1458904-harrison-neil He spoke at CMRC 2018, and at AfME AGM in Nov 2018. I got the chance to chat to him about scans showing increased "activity" in the basal ganglia, but he's not too sure why that was and why it only...

James Lind Initiative, may be different from James Lind Alliance! All so confusing

Healthwatch have produced a survey to gather info on those with chronic pain to feed back to NICE. WARNING: includes questions on suicidal thoughts and self harm...