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I don't think he is interested in dialogue anymore with anyone other than his new BPS friends.

Yes, that struck me as very odd and a basic flaw. Is the first author a surgeon, MBBS? Maybe she was hoping to get something published from the "don't operate on kids with acute appendicitis" study that EC was involved with, but that was a dead end, so EC persuade her to switch tracks.

You are a star @Sly Saint

@PhysiosforME thanks for your Tweets re Paul Garner. I don't think he is an Immunologist. His field is more Infectious disease/epidemiology.

Thank you, that is very reassuring.

Totally agree with you Trish. Being able to do more is what my daughter longs for. She would be happy with more physical or cognitive function. There are some cognitive tests that are useful. @Joan Crawford would know more. I know that Graham was trialling a type of Stroop test and using it in...

Good to see that Baroness Scott is a member, though not at the March meeting. I am encouraged by this news, ie the potential change of structure and a more responsive/action-based core.

@Andy you do seem to be unearthing a huge amount of BPS today!

Four out of five are based in Psychiatry Depts in Oxford.

Who's attending? Registration free for patients/carers/advocates. ETA: I've registered

Thanks for the above transcription @Lucibee. I really didn't want to listen, but it's interesting to read this.

For some of these people access to physiotherapy or similar when their pain is at an earlier stage, with appropriate exercises and follow-ups would be far more useful. Only those with the financial resources are able to access this care.

Last day to complete this research by Dr Nina Muirhead Impact on patient and family of having ME.

I totally agree, but I don't think that's going to happen!

There is now a mention on the 2007 GDL page: https://www.nice.org.uk/guidance/cg53 "NICE is aware of concerns about graded exercise therapy (GET) and is updating the current recommendations. Please see the guideline in development page for information on our update (including draft...

Couldn't agree more! Another kick in the teeth for people with ME and their families, having to wait four more months before they can start to have a base from which to correct the mistreatment they have endured for decades.

Didn't NICe describe it as Post Exertional Symptom Exacerbation?

Wonder how much these forms will change after the new NICE Guidelines?

So, for the ones who were originally allocated to antibiotics, 28 8 had the operation (4 perforated, 4 acute appendicitis) 19 were discharged after 61 hrs (34-125) Of the 19 discharged, 7 were readmitted at a later date and had appendectomies then. For those who had appendectomies initially...

From the full HTA report, Results: "Of the 28 participants randomised to appendicectomy, 27 received the intervention. Seventeen were found to have uncomplicated acute appendicitis, but eight had perforated appendicitis and two had a histologically normal appendix. The median length of stay in...