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  1. rvallee

    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    So now that it has been confirmed that the local services do not perform even the most basic monitoring... what happens? This answer is clearly inadequate, deceitful in fact. There is no assessment of efficacy or safety by anyone. Nothing is actually being recorded as all the cases are treated...
  2. rvallee

    UK House of Lords/ House of Commons - relevant people and questions

    Could have spared some trouble and just answered "whatever, don't care" to every question.
  3. rvallee

    REC advice on PACE trial data changed in favour of release

    Hubris has a very strong downward pull. No matter how much slack you are given, eventually it just runs out.
  4. rvallee

    REC advice on PACE trial data changed in favour of release

    More likely they will somehow argue it is too costly. Then we raise the freaking money and we wait once more for the goalposts to move.
  5. rvallee

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    It's also impossible to verify and dubious considering that there is no blinding and there is constant interaction with the participants. It's as credible as saying a weight loss trial did not weigh anyone so they could not possibly know in advance whether there was any change. It's a context...
  6. rvallee

    A general thread on the PACE trial!

    Pretty much the kind of issue a genuine "skeptic" would notice, leading to them understanding that it is underselling how fraudulent the PACE claims are. Exactly the kind of question an inquiring mind would ask, alongside "what do you mean by 'recovered'?" If only professionals skeptics were...
  7. rvallee

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    That's a standard that is found throughout the psychosocial body of research: "clarifying" something by merely describing it in dry terms. It's not theft, it's removal of property without informed consent. Pretty much all the "clarifications" offered for PACE follow this model. Well, that and...
  8. rvallee

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    Which is definitely something that would be checked beforehand. Otherwise it's like beginning work on a bridge and just hoping whatever municipality has jurisdiction on each side will say yes once you start digging. Makes no sense, it's a clear design flaw that should have disqualified the...
  9. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    It's showing the cover of the current issue. The content management system controls it and it's just not set up to pull something specific for each article. Common mistake and it's pretty sad that a publishing company would make it but whatever.
  10. rvallee

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    With just above it a "trending" Exercise Therapy May Benefit Chronic Fatigue. :sick: Although that the best that can still be said at this time is "may", after 3 decades of insisting it would, is a serious indictment of how poor and aimless this body of research is. "May" is simply not the...
  11. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    What a small, sad man. He wants approval from his peers to continue hurting millions and justify his malicious incompetence.
  12. rvallee

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    Honestly this is worse than doing nothing. It even tries to disappear that there ever was an issue at all. It's completely corrupt. And with Crawley a board member? This is like a microcosm of everything that can go wrong in medical research. It points to serious issues in the peer review and...
  13. rvallee

    Mad Cow Disease: The Great British Beef Scandal

    I usually see examples like cyanide but those are way better.
  14. rvallee

    EU Petition 2019 - opportunity to lobby for funding for ME research

    Excellent! I assume this is for EU citizens only?
  15. rvallee

    Australia’s National Health & Medical Research Council’s ME/CFS Advisory Committee’s final report released

    This isn't half-bad. Skimming through since there's a lot but at least it acknowledges most of the issues. Not sure if it will lead to anything but it's relatively good. Sliver lining but I don't see any of the usual overt bullshit, the ideologues did not bully their beliefs through. One...
  16. rvallee

    Hydroxyproline elevated in ME/CFS

    I don't think there is such a test so it's impossible to make that claim either way. The fluctuating nature alone falsifies it and the PACE researchers admitted themselves (in meeting notes) that participants are moderately active and therefore could not under any consideration be considered...
  17. rvallee

    Suggest a name for Chris Ponting's ME GWAS project!

    Now that's a good one. Simple. Direct.
  18. rvallee

    Mad Cow Disease: The Great British Beef Scandal

    OMF has a study on some metals. I don't know if it will expand but Davis is looking at selenium and uranium using hair samples. If that plays a role it would be very hard to find it without specifically looking for it. Everyone is exposed to toxic chemicals differently over the course of their...
  19. rvallee

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    Ah, yes, the well-known "pinky promise" process of validating bias in scientific research. Thoroughly validated and a seal of integrity that everyone knows to trust and respect.
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