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This is getting to me. Why people with no stake or interest in the matter are even getting involved at all. What are they getting out of it? They're failing massively, are hated by the patient community for it and have actually managed something incredible: to regress an entire field of medical...

Seeing as they ignore 90% of the disease presentation and completely shut out the patient community, treat us with contempt and mock us openly, that's either a completely delusional claim or a massive dishonest one, most likely a combination of both. The psychosocial perspective could not be...

You get what you pay for. Chronic underfunding and absence of leadership guarantee this slow crawl. It's simply advancing at a pace comparable to what current funding allows. Current funding is on the order of 1-2% of what it should be so to make one year's worth of fully-funded research...

Merged thread ‘Havana syndrome’ symptoms of diplomats in Cuba are not mass hysteria Since no one is posting this yet I'm going to right ahead. Replace a few words and this argument could be applied to ME. The main arguments are the same, although the body of evidence is comparably small for...

I hate lies like this, such egregious dishonesty in an official capacity. The distance between the 2 "camps" could not be wider and the main obstacle is precisely that one camp advocates for patients while the other specifically and explicitly sabotages all efforts towards a solution. That...

And Michael Sharpe tweeted it twice. Live look at Sharpe being sad that people don't pay attention to his pathetic attempt at philosophy-without-thought about his medicine-without-morality:

Bit disappointing. I guess he means the current paradigm wrongly focused on fatigue, which is technically correct but needs clarification that it was an invalid reinterpretation from non-experts that only added confusion from the earlier research and was specifically bullied through against...

Experiencing both, I find that absurd. I know what they mean by that and even taking that framing into account doesn't make it any more meaningful. This is a classic case of wanting something to be true and being validated by nothing more than an absence of genuine understanding, the only thing...

As it is with us. I'm fairly convinced that this alone counts for at least half of the questionnaire effect "benefits" in the overall body of ME psychosocial research. Most likely more than that but I'm just playing it safe.

That should have been the SMC arm in PACE but since the PACE team are dishonest hacks and couldn't allow themselves to fail they set it up as an ersatz comparison and made it meaningless. With accurate and relevant information from genuinely well-informed GPs, including symptom management, the...

Oh yeah, forgot about those. They were awful to the point where they should be considered disinformation. Extremely dishonest and clueless at best.

On balance there does not seem to be an observable energy deficit, so the total available metabolic energy seems about normal. So the energy has to be used somewhere, as it's not expelled as waste either. The hypermetabolism may be localized and upstream, depriving the available energy for less...

It's alternative discussion!

Only on the Agardy response, not Michiel's. The Agardy response is available on the main article by Sharpe/Greco, accessible by the tab or linked from here: https://mh.bmj.com/content/early/2019/06/18/medhum-2018-011598.responses.

As far as I can tell, the science on food intolerances is about as chaotic as that on "chronic fatigue", the symptom™. So really impossible to say until that moves forward from the starting line of "there may or may not be such a thing as food intolerance, or something like it". It's quite...

Then I'm even more confused. There were supposed to be 2 types of responses, I guess that's the difference, but that makes for lousy conversation.

I don't know if they're limited recordings but I very much like the shortness of the presentations that are published. I can handle 10-25 min, usually anyway. Multiple presentations that go for 1h each is just too much content to go through. This right here is a good model and the audio quality...

I don't see Michiel's response in the "Responses" tab of the article, only Agardy's. Not impressed with their publishing system. Bit awkward for a publishing company.

It also doesn't help that millions are "diagnosed" with anxiety and depression by merely answer 1-2 questions. The real "crisis of mental health" is that it's enormously inflated, by people with no health problems as well as by people like us who have dismissed health problems. It's not as if...

Hey, if some people didn't have double standards they wouldn't have any.