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BMJ News https://www.bmj.com/content/375/bmj.n2643 ME/CFS: Exercise goals should be set by patients and not driven by treatment plan, says NICE BMJ 2021; 375 doi: https://doi.org/10.1136/bmj.n2643 (Published 29 October 2021) Cite this as: BMJ 2021;375:n2643 Ingrid Torjesen Author...

I missed those. I wonder if those links are static or change every so often?

Would be nice to think so.

Still whinging, then.

Thanks Adam pwme. I think we should have a full copy on the thread: https://www.rcplondon.ac.uk/news/medical-leaders-sign-joint-statement-response-nice-guidance-mecfs Medical leaders sign joint statement in response to NICE guidance on ME/CFS Details 29 October 2021 Press & public relations...

I've asked them.

York Press: Health watchdog no longer recommends graded exercise therapy for ME https://www.yorkpress.co.uk/news/national/uk-today/19681229.health-watchdog-no-longer-recommends-graded-exercise/

GP Online: Reworked NICE advice on ME/CFS warns against 'one-size-fits-all' approach By Nick Bostock, 29 October 2021 https://www.gponline.com/reworked-nice-advice-me-cfs-warns-against-one-size-fits-all-approach/article/1731825

Lack of access, time constraints, no necessity to check copyright status.

Thread here: https://www.s4me.info/threads/getting-better-photos-into-me-media-stories-anyone-know-a-photo-editor.23034/#post-386298

They likely have licenses for obtaining stock images from providers like Getty. Cheaper than paying for individual photos.

A Register of Interests document has been published on the Guideline History page since this morning: https://www.nice.org.uk/guidance/ng206/history Register of interests PDF 1.12 MB 29 October 2021

I daresay that patients with MS or Parkinson's and many other conditions get similarly pissed off with the media's choice of stock images.

As I've added to my comment: Perhaps the orgs could maintain a stock of copyright free images to make available to the press. I wouldn't describe it as "deliberate contempt" rather a lack of imagination and time constraints. Different if it's a feature article. But as I say, press releases...

Not saying it's ideal - it's not; but using stock photos is quick and cheap for the media. Press releases went out yesterday. Not a lot of time to organise photos of actual patients. Perhaps the orgs could maintain a stock of copyright free images to make available to the press.

Thanks, Lucibee. I have now been able to access this the thread.

I have emailed NHS Digital's Elaine Wooler CC: Lynn Bracewell (no longer works for NHS Digital) and Sheree Hemingway (shortly to cease working for NHS Digital) (NHS Digital Terminology and classifications) with this query. Edit: If Ms Bracewell is unable to advise, I have asked that my query...

Have we got this (I'll remove if we have). BACME Press statement: https://www.bacme.info/sites/bacme.info/files/BACME Press Statement NICE Guideline publication Oct 2021.pdf The new NICE Guideline on ME/CFS was published on 29th October 2021 This is BACME’s response to the publication...

Copied from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion Have we got this (I'll remove if we have). BACME Press statement: https://www.bacme.info/sites/bacme.info/files/BACME Press Statement NICE Guideline publication Oct 2021.pdf The new NICE Guideline...

Nothing that I can see yet from BMJ. But I'm sure there will be.