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  1. Kalliope

    News from Scandinavia

    This is how she's titled in the journal: Adjunct Full Professor in Philosophy, University of Maryland Global Campus ETA: This is her twitter bio. Not sure what's the best way to title her.. Diane O'Leary is a philosopher and bioethicist, currently a Visiting Fellow at the Center for Philosophy...
  2. Kalliope

    News from Scandinavia

    There are now 5 responses to this editorial. One in English by professor Diane O'Leary: A balanced view of animosity between researchers and the public The rest are in Norwegian. One by an ME patient, two from the Norwegian ME Association, and the newest from professor emeritus Ola D...
  3. Kalliope

    ME/CFS Alert Episode 125: Interview with Dr. Nina Muirhead

    I believe the prejudice against ME is so deep that speaking up against colleagues after coming down with it yourself will take a lot of courage and receive a lot of backlash. So extra kudos to dr. Muirhead and other doctors with ME as dr. Shepherd for their advocacy work. To be honest, I do...
  4. Kalliope

    ME/CFS Alert Episode 125: Interview with Dr. Nina Muirhead

    Description: In this episode, Dr. Nina Muirhead, an Oxford-educated dermatologic surgeon and an ME patient, talks frankly with Llewellyn King about the diagnosis hole she fell into in Britain, how she coped with her deteriorated health, her wrenching private life (having to stay away from her...
  5. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Science Friday What Does The Future Look Like For COVID-19 Long-Haulers? Interview with Walter Koroshetz from NIH and David Putrino from Mount Sinai. Duration 37 minutes. Koroshetz mentions ME/CFS a couple of times. That Long Covid is an opportunity to learn more about ME as well. As far as I...
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Time has shared the article on social media. They have 12 million followers on FB and 8 million followers on Twitter, so do give a thumbs up and retweet those who can :-)
  7. Kalliope

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Robert Saunders: Thanks. Can you clarify, are you referring to a progress report or the new review of exercise therapy for ME/CFS? If it’s the former, what is holding it up? This was billed as a “pilot project for engaging stakeholders (such as consumers...)”. As a consumer I feel let down...
  8. Kalliope

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Her answer: I'm sorry - I know it's inordinately slow: certainly didn't expect it to be. Not going to pre-empt the report, I'm sorry.
  9. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So good to see this important issue covered in TIME. Excellent advocacy once again from Wilhelmina Jenkins! TIME: Black Women Fighting For Recognition as Long COVID Patients Quotes: It took five years of chronic pain, nausea, fuzzy thoughts and a cruel mixture of fatigue and insomnia for...
  10. Kalliope

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    The Faculty Lounge What's Going on at the Journal of the Royal Society of Medicine? by Steve Lubet Quote: My occasional coauthors David Tuller (UC Berkeley) and Brian Hughes (National University of Ireland) have an important new article in the Journal of Health Psychology. They provide a...
  11. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    REUTERS The faces in the fog of 'long COVID' There's no mention of ME in the article. Quote: “I feel like my 91-year-old mother physically,” says Dominguez, a mother-of-two and a social worker specialising in disabilities, who has been on medical leave since November. A recent survey by the...
  12. Kalliope

    BPS attempts at psychologizing Long Covid

    Nina E. Steinkopf has written a good comment to this article, and also to the interview with Paul Garner which was in the same newspaper. Can positive thinking cure Long Covid? Quote: Physicians and researchers have an ethical responsibility in the way they disseminate medical information...
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Der Standard: Long Covid: Die Krankheit nach der Krankheit It was not possible to get a link to a google translation of the whole article, but here are google translated parts where ME is mentioned: Even months after their illness, the patients whom Stingl looks after in his practice are too...
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    CNN: For many sufferers of long Covid, proving they are sick is a big part of the battle Quotes: Dr. Manoj Sivan, an associate clinical professor and consultant at University of Leeds, was one of the first physicians to start writing about Covid long haulers last spring. As a rehabilitation...
  15. Kalliope

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Trial By Error by David Tuller: Journal of Health Psychology Published Hughes-Tuller Critique of Wessely-Chalder CBT Claims Quote: We were delighted that the Journal of Health Psychology was interested in reviewing our critique, and ultimately publishing it. As can be seen by comparing the...
  16. Kalliope

    Journal of Preventive Medicine & Healthcare: A Comparison of Patients with CFS and ME from USA and Japan - 2021 - Jason et al

    Full title: A Comparison of Patients with Chronic Fatigue Syndrome and Myalgic Encephalomyelitis from the United Stated and Japan Elzbieta Wiedbusch, Joseph Cotler, Leonard A. Jason Abstract: Chronic fatigue syndrome (CFS) and Myalgic Encephalomyelitis (ME) are debilitating conditions found...
  17. Kalliope

    Trisha Greenhalgh on ME/CFS and Long Covid

    Anyone NOT blocked by T. Greenhalgh who can see the tweet H. Vogt refers to? ETA: The tweet appeared when I linked it here! How neat! Had nothing to do with Long Covid, but I'll leave it anyway as threats also seems to be part of a useful narrative for some.
  18. Kalliope

    BPS attempts at psychologizing Long Covid

    The Swedish newspaper Aftonbladet has an article today about quarrel between doctors about what Long Covid is. The article is also covered in the Norwegian newspaper Dagbladet. Aftonbladet: Läkarstrid om postcovid: "Det har blivit ett ställningskrig" google translation: Long-term illnesses are...
  19. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

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