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  1. Kalliope

    BPS attempts at psychologizing Long Covid

    Trial by Error by David Tuller: More on that WSJ Opinion Piece; and Q-and-A with Author of this Week's WJS Rebuttal Quote: Did you already feel this way or did your own experiences change your mind? My own experiences played a large role. There is a lot of skepticism in medicine, and much of...
  2. Kalliope

    Can vaccines cure ME/CFS or Long Covid?

    NPR Mysterious Ailment, Mysterious Relief: Vaccines Help Some COVID Long-Haulers (March 31) Quotes: There are several leading theories for why vaccines could alleviate the symptoms of long COVID: It's possible the vaccine clears up leftover virus or fragments, interrupts a damaging autoimmune...
  3. Kalliope

    Open Medicine Foundation (OMF)

    Janet Dafoe wrote on Twitter that there will be two or three brief teasers like this. Hope the final large article on print will become available online eventually.
  4. Kalliope

    Open Medicine Foundation (OMF)

    That's odd. Obviously the wrong link and thanks for letting me know. Here is the correct one. I'll edit the original post with the correct link. https://people.com/health/scientist-ron-davis-son-chronic-fatigue-syndrome/
  5. Kalliope

    Open Medicine Foundation (OMF)

    People: Scientist Ron Davis Is Fighting to Cure His Son's Chronic Fatigue: 'It's Like a Living Death' A short article. Seems to be a fuller one in the paper version. Quote: Ron, 79, a professor of biochemistry and genetics at Stanford University, explains the illness that has upended all of...
  6. Kalliope

    BPS attempts at psychologizing Long Covid

    A reply by another psychiatry resident, Yochai Re'em. WSJ: The Science Behind 'Long Covid' and the Desire to Wish It Away It's paywalled, but the author has provided a summary on Twitter:
  7. Kalliope

    Cervical (neck) lymph nodes poll

    For me it's been the armpit lymph nodes that's been most bothering. Definitely left side. It's often been downright painful. Haven't noticed any particular side regarding the lyme nodes in the neck when they've been swollen and tender.
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The article continues with the researcher calling it a mystery with many unresolved issues. A completely new disease, like a medical UFO. Then it goes on with: Lars Østergaard says that it is incredibly important to recognize that patients are ill and have a health challenge. - Next, you can...
  9. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Article in Danish TV2 tonight about a theory behind long covid. It has reached Norwegian media with the head line "Danish doctors believe they have found the answer to "long Covid".. quote: First and foremost, the lack of energy formation and the consequent late effects can be due to the fact...
  10. Kalliope

    BPS attempts at psychologizing Long Covid

    Let me know if anyone wants the whole article google translated and sent as a private message.
  11. Kalliope

    BPS attempts at psychologizing Long Covid

    New article in Morgenbladet - this time an interview with Paul Garner. Also this is paywalled, but here are two google translated quotes: Recovery Norway is an organization that shares stories about people who, with the help of cognitive and mental techniques, have recovered from medically...
  12. Kalliope

    Blog: The Science Bit by Brian Hughes

    The Science Bit: Off the PACE and not NICE Quote: Here is a video of a lecture I gave in Belfast just before COVID, entitled “Off the PACE and not NICE: Challenges with Evidence in ME/CFS.” The lecture was part of a conference organised by Hope 4 ME & Fibro NI(kudos to Joan McParland and team)...
  13. Kalliope

    BPS attempts at psychologizing Long Covid

    Medium: At What Point Does medical Gaslighting and Patient Blame Become Negligence and Malpractice? COVID-19 Long Haulers Quote Their Providers By Karyn Bishof Quote: The experiences we have faced with the unknowns, medical gaslighting, medical neglect and malpractice, patient blaming, and...
  14. Kalliope

    News from Scandinavia

    It's the Swedish Minister for Social Security tweeting about the recent news that the government assigns the Social Insurance Agency and the National Board of Health and Welfare to secure support for patients suffering from among other Long Covid and ME. The news was shared by @mango in this...
  15. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Opinion piece for CNN: Doctor: My long-Covid patients' stories of recovery sound familiar to me by Susannah Hills (beware, there's a picture of Paul Garner there, but he's not quoted) Quote: Many suffering with long-Covid symptoms will also remain silent. We have learned about the power of...
  16. Kalliope

    USA radio: NPR/WHYY Episode: The Aftermath of Viruses

    oh cool - they have separated the part with Leonard Jason and ME to this 8 minutes segment which is also in written version. Quote: The pandemic and its sudden onslaught of long-haulers unable to smell, or out of breath for months on end, may force a change. They’ve ignited renewed investment...
  17. Kalliope

    BPS attempts at psychologizing Long Covid

    A weekly, Norwegian newspaper - Morgenbladet - has an article about Long Covid where among others Wyller is interviewed. The article is paywalled, but here are some google translated quotes, and it seems he gets a bit resistance from another researcher (Langeland): Wyller is one of the...
  18. Kalliope

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    The research team has written an article about this study for the Kavli Trust who has supported them financially over several years. The article is aimed at lay people. For now it's only in Norwegian version, but the Kavli Trust often translates articles into English, so let's hope they'll do...
  19. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Medscape: COVID-19 'Long-Haul' Symptoms Overlap With ME/CFS by Miriam Tucker - People experiencing long-term symptoms following acute COVID-19 infection are increasingly meeting criteria for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a phenomenon that highlights the need for...
  20. Kalliope

    BPS attempts at psychologizing Long Covid

    Prof. Vincent Racaniello has shared it on Twitter
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