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But sadly he liked this tweet from prof. Gundersen sharing the article with the following comment (my translation): This ought to be a "case" in the discussion about academic freedom. Being a researcher should not be a popularity contest. And it is the institution's damn duty to protect the...

New article: ME/CFS and the SMILE trial quote: Implications The SMILE trial contained one of the major methodological problems that occurred in the PACE trial – outcome swapping. The original outcome measure, school attendance at six months, yielded a null result. Repeating the errors of the...

It worries me that the Research Ethics committees has shared the article on Facebook. Does this imply they support the LP trial despite the criticism it has received? I've noticed they've also shared another Khrono article from yesterday interviewing researcher Arnstein Mykletun, senior...

I wonder if actually someone else than ME patients might have asked some critical questions concerning LP and the planned study, and that this is the reason behind the article? Wyller wants his institution to stand up for him. His appeal might indicate that they're not.

Great timing for a hit piece same week as the National Committee for Medical and Health Research Ethics will be having the complaints concerning the planned study on Lightning Process on their agenda. I'm sick to my stomach after having read the article and the way he describes patients. This...

Time - A Year Into the Pandemic, Long COVID Is Still Burdening Patients - and Their Caregivers quote: - One of the leading theories in the field is that some patients have an abnormal immune or inflammatory response, such that the immune system revs into overdrive, attacking the body in the...

It follows the script to the standard Recovery Norge anecdote. That they were afraid of symptoms, afraid of triggering PEM. I don't know whether it really happened that way or if they've been told so.

Quote from the interview: - The Cochrane review of exercise treatment for chronic fatigue is very well done and it was useful to me later in the illness, although early on when I was still feverish I needed to rest. ETA: - It’s not been an easy journey and I’ve had the most horrendous...

CNN A Stanford scientist's quest to cure his son could help unravel the mystery of Covid-19 long haulers by Ryan Prior Quote: - We did a study on severely ill patients that we're still working on, and one idea we got from the study is that severe patients are likely to have what's wrong with...

"ME/CFS and deconditioning" Quote: A previous post examined the Wessely School hypothesis that ME/CFS is caused by unhelpful beliefs. This idea was exploded as a myth. Here I examine a second Wessely School hypothesis (H2) that states: Deconditioning causes, or exacerbates the symptoms of...

I've never heard about this institute before either. Noticed a tweet about this paper on twitter that was retweeted by Long COVID Physio and thought it was interesting to see among other a call for a Long Covid minister. Seems they've at least involved some patients during the process.

I thought the interview was good, but agree this is a not a trust worthy source for health information, so good thing you added that.

Tony Blair - Institute for global change A Long-Term Plan for Long Covid Conclusion It is almost six months since we last wrote on Long Covid. In one sense, a number of things have changed, with progress having been made in certain areas. We now have a recognised diagnosis for Long Covid...

Business Insider interviews physical therapist Noah Greenspan from New York about long-haulers. He has created a bootcamp "to help long-haulers manage their symptoms". CFS is mentioned in the article several times. He seems to be confusing PEM with fight-or-flight-mode. Business Insider: Most...

"Unhelpful beliefs do not cause ME/CFS and MUS symptoms" Quote: The Wessely School approach to ME/CFS and MUS hypothesizes a causative role for unhelpful beliefs (H1), deconditioning (H2), and biased attention (H3). The evidence related to these three hypotheses is reviewed in turn. Here I...

"Treatment harms to patients with ME/CFS" Quote: - Despite evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), the dominant therapeutic approach has been cognitive behaviour therapy (CBT) and graded exercise therapy (GET)...

The Norwegian Institute of Public Health has published a report: COVID-19-Epidemic: Covid-19: Long-Term Effects of COVID-19 - a rapid review It has a summary in Norwegian, the rest is in English. Not able to read it, but noticed that one of the authors was Brurberg, who also was co author on...

I think you are correct. My impression is also that they tend to have some mercy for the probably very nervous candidate. Would you agree?

I've never attended a PhD examination, so am not really sure. Here's how the University in Oslo describes the process and the opponents role: Public defence The disputation is the public defence of the thesis. It lasts between two to three hours, and is led by the chair of the defence. The...

California Health Online - For Covid 'Long Haulers,' Battling for Disability Benefits Adds Aggravation to Exhaustion by David Tuller Quote from the article: Given the lack of testing in the first months, many “long haulers,” like Andersen, have no laboratory proof of infection. While antibody...