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The Atlantic: Unlocking the Mysteries of Long COVID by Meghan O'Rourke Quotes where ME is mentioned: - The patients’ symptoms were too varied to be lumped under an established label; in some ways the condition resembled dysautonomia, and POTS in particular—but it was not textbook. (Some...

Yes it was a good episode with an all too familiar story. Alice Urbino was very eloquent with great reflections and analysis. She was just a teenager when she did LP and has been in therapy for help with untangling the internalised gaslighting it led to. Wonderful of her to tell her story and...

Overall a good article, but apparently the author didn't read Paul Garner's most recent BMJ blog post..

It's good of them to bring attention to this, but I wish they'd underlined that it is biomedical research that's needed the most when they write (my bold. text google translated):

Trial by Error by David Tuller: Psychosomatics Journal Linked to PACE Authors Highlights Bias from Subjective Outcome

Yes, a place where people could share their stories about undocumented treatments. How it has affected them as you say, the financial costs and also straight out harm for some. I'm pretty sure the stories would soon exceed Recovery Norge's collection in number.

The Lancet: Long-haul COVID: heed the lessons from other infection-triggered illnesses by John N Aucott and Alison W Rebman ETA: Both authors are from: The Lyme Disease Research Center, Division of Rheumatology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore

Maybe this should be on the Monbiot thread, but I believe dr. Pope's reply belongs here. Haven't seen that argument before, that "Covid-PVF" doesn't belong under the Long Covid umbrella.

Nature: US health agency will invest $1 billion to investigate 'long COVID' The article doesn't mention ME, but underlines the importance of patient perspectives. It also links to the Nature editorial from last year urging to not repeat the mistakes that were done towards ME patients when it...

Trial by Error by David Tuller: A Q-and-A with Tracie White, author of The Puzzle Solver

Stanford Medicine - SCOPE I wrote a book about a scientist's journey to save his desperately ill son by Tracie White

Not sure if this is the best thread or if this has been shared before, but a clever friend just found that Trisha Greenhalgh was first opponent at Henrik Vogt's dissertation. I thought that was interesting to know. It says so on the university's (NTNU) website. Original link in Norwegian google...

New blogpost from Naomi Whittingham Seeking Peace in a World of Uncertainty

Walter Koroshetz links to a short news segment by NBCNews from yesterday interviewing Francis Collins and Avindra Nath on research on Long Covid. Collins promise no stone will be left unturned. ME is not mentioned.

Copied from the long Covid thread. Walter Koroshetz links to a short news segment by NBCNews from yesterday interviewing Francis Collins and Avindra Nath on research on Long Covid. Collins promise no stone will be left unturned. ME is not mentioned.

Frances Ryan commented on Twitter

Twitter bio to Prof. Akiko Iwasaki: We study innate and adaptive immunity to #viruses and #cancer. #COVID19 #immunology #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleEMD @YaleSPH . She mentions ME/CFS towards the end of the thread

I don't know if this is worth sharing..

I remember prof. Ola D. Saugstad said in a talk a few years back it could make sense if there were higher prevalence in Nigeria, as there are more infections among the population. He was referring to a paper from Jason et al comparing prevalence in a region in Nigeria with a region in USA (if I...