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This post has been copied from the Long Covid thread here Just discovered that CDC has updated information about ME and Covid-19. Perhaps it's been shared before, and I've forgotten, but here it is: ME/CFS and COVID-19: What we know CDC is working with partners and stakeholders to better...

Summary We conducted a double-blinded phase I clinical trial to establish whether nicotinamide adenine dinucleotide (NAD) replenishment therapy, via oral intake of nicotinamide riboside (NR), is safe, augments cerebral NAD levels, and impacts cerebral metabolism in Parkinson’s disease (PD)...

The Atlantic The Virus That Causes Mono Does a Lot More Than That by Sarah Zhang Quote: The debilitating fatigue associated with long COVID and other post-viral syndromes does look, in some ways, like the fatigue caused by mono. And in the 1980s, doctors noticing the similarity had begun...

The Norwegian ME Association is organising a webinar with prof. Brian Hughes on the NICE guidelines. Anyone can register on zoom for free and I assume most of this will be in English. It takes place 10th March 2022, 14.00 (local time). They've announced on Facebook that the webinar will be...

David Tuller on Facebook: Yesterday I received a thoughtful note from Professor Miek Jong of Norway's NAFKAM agency in response to a recent letter I'd sent her. The letter was about the effort by a leading Norwegian doctor to denigrate my work by calling me an “ME activist.” Today I sent...

Røysumtunet is the first institution in Norway with an offer for severe ME patients. They accept patients from all over the country, but Bærum municipality rejects any cooperation with the institution and thus blocking this offer for severe ME patients in their area. Two doctors have written...

I agree. But it seems almost impossible to get that point across, so it might have been a way to remind people of the large majority left without help, instead of raising a new round of CBT debate.

Nina E. Steinkopf has written the following blog post about the dissertation providing more details and background: Doctoral dissertation casts doubt on ME Quote: By casting doubt on whether the symptoms of ME are objective or if it makes a difference in which diagnostic criteria that are used...

A great opinion piece by psychologist, author and ME sufferer Frøydis Lilledalen in the Journal for Norwegian Psychological Association. She writes about "the circle of pain". How she was taught that patients increase their pain and suffering by focusing on them. But nobody taught her that this...

NPR How long COVID sheds light on other mysterious (and lonely) chronic illnesses An interview with Meghan O'Rourke. There's also a 43 minute audio interview which I haven't listened to yet. Quote: The reason I [say] autoimmune diseases and chronic fatigue syndrome or myalgic...

I agree. It also wouldn't surprise me that if they have succeeded in providing proper care for severe ME patients, no noise, help with eating, few carers who are also knowledgable about ME and pay attention to reduce stimuli, help with pain and sleep, nothing for the patient to have to...

Dag Gundersen Storla, a doctor from Røysumtunet, who has many years of experience with ME and also runs a private clinic in Bærum Municipality, has today an opinion piece in the local newspaper Budstikka. He says that information about this institution now accepting severe ME patients has been...

DW News has made this mini documentary about Long Covid with people from India, Germany, Kenya and USA all talking about the same set of symptoms and struggles. The part from USA also includes additional struggles for people of color with Long Covid. One of the doctors interviewed, is Bettina...

The Sydney Morning Herald Inside a long COVID clinic, a chronic condition is revealed Quotes: Recognising the complexity of this new condition, Irving established a multidisciplinary team of specialists at the Royal Melbourne’s long COVID clinic, including psychiatrists, exercise physiologists...

A personal story about the desperate search for treatments New Scientist DIY treatments and clinical trials - one person's tale of long covid quote: Will these interventions work? Only time will tell. But like many other long haulers, I am willing to try anything. So, I find myself googling...

Opinion piece by civil engineer and ME patient Benedikte Monrad-Krohn in the medical newspaper Dagens Medisin quote: Although research on behavioral therapies has not differentiated between patients with and without PEM, the results are still interesting. Some argue that "it is the best we...

A feature article (paywalled) in the Norwegian newspaper Klassekampen titled: Missing: Emilie It's about 23 year old Emilie who suffers from severe ME. The article describes in detail her every day life and the battle against those who should be there to help. For instance when Emilie was...

Post copied from the News from Scandinavia thread A feature article (paywalled) in the Norwegian newspaper Klassekampen titled: Missing: Emilie It's about 23 year old Emilie who suffers from severe ME. The article describes in detail her every day life and the battle against those who should...

Spotted the paper in a tweet by prof. Kunst with the comment: Wow. This important new preprint demonstrates epigenetic changes in #MECFS patients during relapses/crashes. These patients showed "functionally important changes in their DNA methylomes that lead to compromised physiology".