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  1. Kalliope

    Preprint Medrix: Dynamic Epigenetic Changes during a Relapse and Recovery Cycle in ME/CFS - Helliwell, Tate et al -2022

    Preprint Medrix Dynamic Epigenetic Changes during a Relapse and Recovery Cycle in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Helliwell A.M., Stockwell P.A., Edgar C.D., Chatterjee A., & Tate W.P. Abstract (242) Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is...
  2. Kalliope

    Suggestions of good sources on the background to the ME saga, PACE, etc. up to the new NICE guideline

    If you're looking for something newly written and short, just to get the headlines of the story, George Monbiot's article was a pretty great summary: https://www.theguardian.com/commentisfree/2021/jan/21/were-about-to-see-a-wave-of-long-covid-when-will-ministers-take-it-seriously
  3. Kalliope

    Front. Med Editorial: Current Insights Into Complex Post-infection Fatigue Syndromes ... ME/CFS & Beyond, 2022, Westermeier et al

    Editorial: Current Insights Into Complex Post-infection Fatigue Syndromes With Unknown Aetiology: The Case of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Westermeier, Lacerda, Scheibenbogen, Sepulveda Conclusions In conclusion, this Research Topic collects further pieces of evidence...
  4. Kalliope

    Long Covid in the media and social media 2022

    National Geographic As long COVID cases grow, clues emerge about who is most at risk Quotes: Each risk factor was linked to specific long COVID symptoms. Those with autoantibodies, for example, tended to experience fatigue and respiratory symptoms. Type 2 diabetes was associated with the common...
  5. Kalliope

    JOSPT: Lessons from ME/CFS for Long COVID - 4 part series, 2022, Davenport et al

    JOSPT Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID Part 4: Heart Rate Monitoring to Manage Postexertional Symptom Exacerbation by Todd E. Davenport et al Summary A combination of HRM and symptom journaling will best assist patients and clinicians to track...
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Patient-doctor protesting loudly against humbug treatments. Best thing I've seen today :thumbup:
  7. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    National Geographic How COVID-19 can har pregnancy and reproductive health quote: “Long COVID affected predominantly women, and they were not listened to,” says Bateman. “They were told it was all an emotional response to the pandemic.” A quest to understand post-viral syndromes...
  8. Kalliope

    (Coming) thesis: Tarjei Tørre Asprusten "Diagnosis of Chronic Fatigue Syndrome in Adolescents" - 2022

    He is 35 years old and currently working as a GP, so not at the very start of his career. Must be an old photo they've used where he looks much younger. But that just makes it worse. Had he been 10 years younger it might have been easier to excuse him for trusting his professor completely and...
  9. Kalliope

    (Coming) thesis: Tarjei Tørre Asprusten "Diagnosis of Chronic Fatigue Syndrome in Adolescents" - 2022

    One of the opponents is Charlotte Ulrikka Rask from Psychiatric Hospital for Children and Adolescents in Aarhus, Denmark. There's a long list of publications from her on functional disorders https://pure.au.dk/portal/en/persons/charlotte-ulrikka-rask(1e308742-df61-47da-83ce-53d8a7c774c3).html...
  10. Kalliope

    (Coming) thesis: Tarjei Tørre Asprusten "Diagnosis of Chronic Fatigue Syndrome in Adolescents" - 2022

    The link above was shared by one of University of Oslo's twitter accounts with the summary: Fatigue is fatigue!
  11. Kalliope

    (Coming) thesis: Tarjei Tørre Asprusten "Diagnosis of Chronic Fatigue Syndrome in Adolescents" - 2022

    Tarjei Tørre Asprusten will be defending his thesis "Diagnosis of Chronic Fatigue Syndrome in Adolescents" for the degree of PhD 7th March 2022. Principal supervisor is prof. Wyller. Summary Diagnostic labels as Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME) and Systemic...
  12. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Psychologist, author and ME sufferer Frøydis Lilledalen has written an opinion piece for a news site about research where she explained reasons behind why this study is making ME patients frustrated. Hvorfor i huleste reagerer ME-syke på et forskningsprosjekt? google translation: Why in the...
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Salon The kids are not alright: Data suggests 10% of children with COVID-19 become "long-haulers" Quote: For one, older children and adolescents appear more at risk of long Covid than babies and young children. Yonts said she is primarily seeing long Covid in the 11 to 17 age range. Mohandas...
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Guardian How Covid changed medicine for the future “There might be a point of no return for many ME/CFS patients – this might also be the case for long Covid, if you don’t treat early in the disease onset,” says Pretorius, “then the body can become overwhelmed by inflammatory molecules that...
  15. Kalliope

    How Long Covid Exhausts the Body, New York Times, February 2022

    I have a subscription. This link should work...
  16. Kalliope

    How Long Covid Exhausts the Body, New York Times, February 2022

    Also cites Avindra Nath, David Systrom and Akiko Iwasaki. I just sent it to a family member who believes Covid-19 now with Omicron is not even a minor inconvenience and has stopped with precautions.
  17. Kalliope

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    Trial by Error by David Tuller: My Letter Responding to Norway Health Leader's Efforts to Denigrate My "Activist" Work quote: Since Dr Flottorp invoked my name and work, I figured the situation warranted an intervention on my part. I have sent the following letter to Dr Jong;
  18. Kalliope

    LP-fortellinger - Norwegian website sharing information and experiences about Lightning Process - now available in English

    Yes, but they claim to be speaking on behalf of "many". The Norwegian ME Association has by comparison approximately 6 000 members.
  19. Kalliope

    LP-fortellinger - Norwegian website sharing information and experiences about Lightning Process - now available in English

    A new website was launched today in Norway; LP-fortellinger (LP-stories). For now it has 32 stories about ME patients' negative experiences with Lightning Process. It also has some information about ME, LP, Recovery Norge and a collection of resources. The people behind the website are...
  20. Kalliope

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Walter Koroshetz has tweeted about the grant:
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