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#MEAction Urges Congress To Hold NIH Accountable "MEAction has sent a letter to the Congressional House Subcommittee on Health (Energy & Commerce Committee), following their recent congressional hearing on Long COVID. Our letter urges Congress to hold the National Institutes of Health (NIH)...

Merged thread Lady Gaga ties her fibromyalgia to previous trauma, sexual assault The interesting part: "After Gaga, whose real name is Stefani Joanne Angelina Germanotta, went to a hospital to seek treatment for physical pain years after being raped, she said, the recurring sensation of...

I don't have any problems with digesting food, however, I get terrible, terrible cravings for sugar when in PEM. The interesting thing is that I can eat much less in PEM, my appetite really drops. But I still crave something sweet, usually small biscuits/cookies and I can totally overdose on...

Chronic fatigue is not hysteria but a serious post-covid symptom Very odd article and I think this type may be even more harmful than purely BPS inspired ones because it mixes things. I don't think this is intentional: people not familiar with the topic write articles about it now and turn to...

Thanks for this! I can't speak German very well, so I don't follow German-language media, although I really should. Michael Stingl is the closest ME/CFS specialist to Hungary, geographically speaking, and several months ago I included him as the only specialist in my list of doctors in the...

Great article! "At various times in the past, members of this discipline have similarly defended the “refrigerator mother” theory of autism, the use of tooth extractions to treat schizophrenia, and claims that AIDS is caused by depression rooted in “group fantasy” among gay men. " I didn't...

Perth charity funds ME research with potential clues into long Covid "ME Research UK, along with The Gordon Parish Charitable Trust, has announced a £400,000 joint initiative to research the role of viruses in ME/CFS. The research project is not only relevant to ME/CFS, but also to long Covid...

Structured Abstract Objectives. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can have profound effects on function and quality of life. This report updates a 2014 Agency for Healthcare Research Quality (AHRQ)-funded review in order to synthesize the evidence on evaluation and...

Psychology Today: COVID-19, Chronic Fatigue Syndrome, or Both? Long-COVID syndrome and its impact on how we perceive and research CFS. I'm still quite brain-fogged but I couldn't find anything pointing to any BPS agenda in the article, it seems to just simply state the possibility of the...

So I wanted to include this because we don't seem to have a lot of ME/CFS specific quackery going on in Hungary but we do have c-peptide, which seems to be a very local wonder drug, the number of people who swear by it is astonishing. It is not specifically for ME/CFS but they claim it cures all...

Do you think you have Chronic Fatigue Syndrome? Here's what you need to do There's an entire podcast with a South African doctor about ME/CFS, which I unfortunately can't listen to right now due to PEM. But it looks good. "Pippa Hudson talks to Cape Town medical doctor Elizabeth Murray, who...

OK, so my plan right now, as a layman: - Get my cytokines tested to see what is going on. I'll do this privately because I'm frustrated by how slowly my diagnosis (by excluding everything) is happening with my doctor (6+ months now). Currently they only test for INF γ and IL-4. The bigger test...

@Ravn I've also found this Montoya study on treating people with higher IgG antibody titers against EBV and HHV-6 with the antiviral valgancyclovir. Quote: "Biological endpoints included monocyte and neutrophil counts and cytokine levels. (...) In the VGCV arm, monocyte counts decreased (P <...

Oh wow, good! Maybe they received a lot of complaints.

Ask an Exercise Physiologist: Hacks for burnout and struggling with fatigue The question: I suffer from Chronic Fatigue Syndrome (coming up to 12 years). I was wondering if there are any hacks for preventing burn-out and CFS? Whenever I’m overwhelmed and stressed, my exercise routine is the...

U.S. News: In Long COVID, Advocates Battling Chronic Fatigue Syndrome See Allies, Hope Another good quality article that goes into detail about the subject, particularly the fact that biomedical research into ME/CFS is seriously underfunded. "Members of Congress have also taken note. At the...

Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population https://www.nature.com/articles/s41598-020-77105-y

I'm asking because for me they seem to be consistently slightly elevated, in the 8.5-9.5 range. Not that I have a million test results but the few I have are consistent and this is the only value that is off. I have very very mild Hashimoto's thyroiditis and I asked the endocrinologist at the...

"They know almost nothing about it here, although it has ruined life for many of us" - a misunderstood disease, chronic fatigue syndrome This is an article with ME, both literally and figuratively. :) This is the one with the journalist that I messaged a few weeks ago about correcting what that...

(I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do something like that pretty interesting Norwegian survey with 6000 pwME participating that showed there was a peak in onsets in 2009, probably due to H1N1...