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Yup :( And being former head of the RCGP explains a lot about how the lousy NHS internal training sourced from the "rousing reassurance" FINE trial happened. Also why, despite there being no evidence for it, the NHS qualifies ME as somatoform in practice and internal documentation, in...

Disability is the only support that has helped me. Literally. Disability denial should be a crime, instead it's encouraged. Blergh.

Excellent response! Ignores the pretend argument by Sharpe and focuses on the real points of controversy.

So that would make it independent validation of this? I don't see Shukla on this paper. From the wikiwikiwik: Abnormal, but how much so?

Only when they agree with them, of course. That's the only grading allowed. "Fake news" isn't "fake" because it's false, it's "fake" because it's bad.

From the phrasing it's not so much high-quality as "not so overly biased as to render the conclusions suspect". Overall quality in unblinded trials with self-reported outcomes is always of the lowest possible tier. I doubt that any CBT study would qualify as high quality on its own merits...

Really awful answers by Gerada. Asked about the reliability of unblinded trials with self-reported outcomes (in pharma trials no less, to remove the ideological blinders) and the feigned outrage is directed at Cochrane for obviously finding such evidence to be weak (despite actually publishing...

At bottom of the post by Kalliope are images of correspondence: I only skimmed through but noticed a few interesting things.

Not about ME but the general evidence basis for CBT. This aligns with work by Keith Laws, who regularly reports on CBT trials failing left and right and being shown to be no better than, well, nothing. There is growing evidence that ALL the evidence for the efficacy and safety of CBT is...

Something something auras and Tarot cards. Or just about as credible anyway. As we've seen many times when the quiet part is said out loud: it's not about the substance of the BS, it's all about being confident in narrating the BS. The semantics are the trick they play, none of them actually...

Kinda. Just that it applies to those sabotaging both diseases, not their victims.

Williamson seems kooky but I'd take her over any of the psychosocial lot any day of the week. She at least seems to place some inherent value to human life. It's a different kind of kooky, at least it's benevolent in intent, rather than being entirely motivated by ideological self-interest and...

Like saying you had a great discussion with someone who listened to everything you said and had nothing to say in return. That's not a discussion, that's either a lecture or a monologue. Above all it really shows what they really think of patient engagement: do as I say and don't talk back...

Hindsight will be brutal on all those decisions. Creating medical guidelines based, above all, on nothing more than "I believe X" and "I don't believe Y". Logical fallacies make for very poor cement in the mix. The universe doesn't operate based on anyone's personal beliefs, justified by what...

Notable, from Tovey, May 24 2019: The emails are a fascinating read and just about the most damning they could possibly be. It is inexplicable that, with all those flaws, Cochrane should have published this review in the first place and the matter needs to move beyond correcting the mistake but...

Reading the included document and this is a remarkable quote: The authors acknowledge that there is selective reporting but don't believe that it's a problem. When you are acknowledging that you did selective reporting you have already lost the plot and truly have nowhere else to go. This is...

Not surprised but this should be a big deal, if laws and regulations matter anyway. Governments are supposed to make decisions based on real data and justify why those decisions were settled on. By extension all government bodies are subject to this obligation of, in a nutshell, not making stuff...

Oh, no. Can you imagine being told you're wrong? The gall. Bad patient, bad.

I can't read it all, it's too long for me, but from the first few parts this is a seriously well-researched and -informed portrait of how disabling ME is. It describes the variability and severity of impairment and how there need to be special accommodations to genuinely help us. This is...

Two links I have bookmarked: Exercise–induced changes in cerebrospinal fluid miRNAs in Gulf War Illness, Chronic Fatigue Syndrome and sedentary control subjects: https://www.nature.com/articles/s41598-017-15383-9 Brain chemistry study shows chronic fatigue syndrome, Gulf War illness as unique...