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@rvallee has just posted a retweet of this by Carson https://www.s4me.info/threads/uk-nice-2021-me-cfs-guideline-published-29th-october-post-publication-discussion.22996/page-34#post-395460

"by saying post-exertional malaise is a key symptom for me cfs i think is critical" yes, but it still isn't mentioned on the NHS websites. Also, PEM is now being picked up by others not just the ME community and they are putting their own spin on it. It is crucial that it is put out there asap...

"interestingly nice often publishes something in the bmj but in this case nothing has been published yet" does anyone know if NICE have anything in the pipeline on this?

video posted on youtube

Whitecraig headteacher departing after ME diagnosis https://www.eastlothiancourier.com/news/19755650.whitecraig-head-departing-diagnosis/

Hywel Williams Shadow PC Spokesperson (International Development), Shadow PC Spokesperson (Work and Pensions), Shadow PC Spokesperson (Defence), Shadow PC Spokesperson (Cabinet Office), Shadow PC Spokesperson (International Trade), Shadow PC Spokesperson (Foreign Affairs), Shadow PC Chief Whip...

https://www.s4me.info/threads/michael-sharpe-mind-medicine-and-morals-a-tale-of-two-illnesses-2019-bmj-blog-and-published-responses.9729/

click on tag 'getset'

This website has been updated but is still awful starts with: and includes most of the literature it linked to before is still available but has [archived copy] next to it. then there is this long way to go. https://www.psychologytools.com/professional/problems/chronic-fatigue-syndrome/

An Update from Dr. Chris Armstrong, Director of the Melbourne ME/CFS Collaboration https://www.omf.ngo/an-update-from-dr-chris-armstrong/

“A historic success for the sick” https://globalhappenings.com/politics/53208.html

Abstract The modern woman has taken her rightful place in society as a worker, a caregiver, a mother, and a world citizen. However, along with the privileges of these roles comes the great cost of stress and resultant exhaustion and fatigue. Psychosocial, physical, cultural, and disease-related...

reminds me of this Chalder: It's the fear, stupid. https://www.youtube.com/watch?v=tPxmpZPpZz8

thread on that study here https://www.s4me.info/threads/use-of-cardiopulmonary-stress-testing-for-patients-with-unexplained-dyspnea-post–coronavirus-disease-2021-mancini-et-al.23614/ eta: includes links to articles about the study

article on the study https://newatlas.com/health-wellbeing/long-covid-chronic-fatigue-syndrome-shortness-breath-fatigue/ eta: another article https://www.crtonline.org/news-detail/chronic-fatigue-syndrome-common-in-covid-long-haul eta2: and another...

Abstract Objectives The authors used cardiopulmonary exercise testing (CPET) to define unexplained dyspnea in patients with post-acute sequelae of severe acute respiratory syndrome-coronavirus-2 (SARS-CoV-2) infection (PASC). We assessed participants for criteria to diagnose myalgic...

Podcast Review: The Challenges Facing ME/CFS Patients and the Future of Personalised Treatments 29 November 2021 By Ara Schorscher-Petcu Appeared in BioNews 1123 https://www.bionews.org.uk/page_160574

it started off with 14 https://www.s4me.info/threads/exploring-the-validity-of-the-chalder-fatigue-scale-in-chronic-fatigue-syndrome-1998-morriss-et-al.11065/

for sharing