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More on the Specialised Health Clinics here:Australia and New Zealand clinics: Specialised Health

all research B.A. Bannister https://www.researchgate.net/scientific-contributions/B-A-Bannister-38388955 https://pubmed.ncbi.nlm.nih.gov/?term=Bannister%20BA%5BAuthor%5D&cauthor=true&cauthor_uid=3074289

Merged thread Wales: Doctor with long Covid found to have multiple blood clots in his brain Dr Ian Frayling, 62, a retired NHS genetic scientist, has battled long Covid for more than a year and a half https://www.walesonline.co.uk/news/health/doctor-long-covid-found-multiple-22277494

videos available on vimeo https://vimeo.com/485618376

Post-Exertional Malaise: How to Cope with Crashing After Activity https://thehealthsessions.com/post-exertional-malaise-how-to-cope-with-crashing-after-activity/ pretty soon everyone will be saying they have PEM.

I started working on one based on the youtube generated transcript but don't think I'll get it done so you might as well just read the transcript on youtube, although as always there are some unusual results eg "positive exertional males" for pem:D

https://www.england.nhs.uk/patient-safety/learn-from-patient-safety-events-service/ (there is a short video that explains how the system will work) I've not been able to access the patient eform so I don't know what information they ask for.

Just been looking through other CFS/ME CFS, clinics (am yet to find one that is ME/CFS) and a lot seem to be avoiding actually saying what they do with regards to treatment by saying "using evidence based treatment programmes following NICE guidelines" eg...

Barry Sheerman Labour/Co-operative, Huddersfield To ask the Secretary of State for Health and Social Care, what steps he is taking to help ensure high standards of care by the NHS and other healthcare providers to those diagnosed with Myalgic Encephalomyelitis. Tweet Share Hansard source...

Hair samples capture Covid’s stressful toll https://www.nottingham.ac.uk/vision/hair-samples-capture-covids-stressful-toll

A Botanical Product Containing Cistanche and Ginkgo Extracts Potentially Improves Chronic Fatigue Syndrome Symptoms in Adults: A Randomized, Double-Blind, and Placebo-Controlled Study Juntao Kan1†, Junrui Cheng1,2†, Chun Hu3†, Liang Chen1, Siyu Liu1, Dawna Venzon3, Mary Murray3, Shuguang Li4*...

see post here re origins of 'brainfog' https://www.s4me.info/threads/possibility-of-me-or-pvfs-after-covid-19-long-covid.14074/page-191#post-330649

https://www.s4me.info/threads/evidence-based-care-for-people-with-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis-2021-sharpe-chalder-white.22905/page-8#post-394005

Brain fog, and now post exertional malaise, terms that were until fairly recently only used to describe ME/CFS symptoms have been hijacked and become generic terms. Maybe we should learn from the Fibromyalgia community? They use fibro fog, there are many article on this (even the NHS recognise...

"[Fatiguability]: Muscle fatigability, whereby, even after a minor degree of physical effort, three, four or five days, or longer, elapse before full muscle power is restored and constitutes the sheet anchor of diagnosis. Without it I would be unwilling to diagnose a patient as suffering from...

Abstract This review summarizes the symptoms and signs seen in patients with chronic fatigue syndrome (CFS). It is based on the authors' experience with two cohorts of approximately 510 patients with chronic debilitating fatigue and on the reported experience of other investigators with similar...

Merged thread Renewed discussion of the petition " The meeting is planned to take place in Brussels on 1 December 2021. The petition on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is scheduled to be dealt with at around 10:15 CET. Evelien Van Den Brink, ME/CFS patient and one of...

moved post https://www.verywellhealth.com/what-is-malaise-189334 so PEM is a separate 'disorder'? since when?