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  1. Sly Saint

    A Girl Behind Dark Glasses - Jessica Taylor-Bearman

    Donors help mum raise thousands for lifeline wheelchair https://www.gazette-news.co.uk/news/local/braintree/19345157.witham-mum-thanks-donors-raising-funds-lifeline-wheelchair/?ref=rss
  2. Sly Saint

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    :banghead: possibly the most frequently used emoji on the forum. The last response to one of these FOIs was that the data could not be supplied because Peter Denton White had retired and there was no one else at QMUL who could extract the data...... miraculously this data has been retrievable...
  3. Sly Saint

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    Tynwald Douglas IOM 19th May 2021 Motion to hear witnesses – General Debate on Myalgic Encephalomyelitis pdf: https://www.tynwald.org.im/business/hansard/20002020/t210519%20RHB.pdf
  4. Sly Saint

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    ironic as it was Robert Courtneys (a former member on this forum, sadly no longer alive) analysis/submissions that were key in this 'process' being instigated. eta: it has just occured to me that a lot of patient groups are represented here, so are they all classified as 'activists'?
  5. Sly Saint

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I would be very surprised if she didn't have any connection to Wessely https://www.arno.org.uk/commander-kay-hallsworth-joins-arno-rnoc/ eta: I think this might be posted somewhere on the forum Personal Disability Stories: 10 – Kay’s story...
  6. Sly Saint

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I was very surprised to see that these had already been chosen; I thought this report was to keep us updated on the progress of the process but it seems to be more of a fait accompli.
  7. Sly Saint

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I would far prefer to see @PhysiosforME involved rather than Peter Gladwell (BACME, physiotherapist). eta: I would think that any key member of BACME would be considered to have a definite COI see BACME board...
  8. Sly Saint

    The Lancet EiC (Richard Horton) honored as leading scientific and human rights voice at forefront of pandemic

    https://www.elsevier.com/connect/the-lancet-eic-honored-as-leading-scientific-and-human-rights-voice-at-forefront-of-pandemic cough; PACE trial is still there Dr Horton.
  9. Sly Saint

    The placebo effect in inflammatory skin reactions: the influence of verbal suggestion on itch and weal size, 2015, Darragh et al.

    not a very good choice if testing any kind of reaction: https://eczema.org/information-and-advice/living-with-eczema/aqueous-cream-and-eczema/ (note: you don't have to have eczema to have a bad reaction to AC).
  10. Sly Saint

    Spotlight on Long Covid webinar series, The Royal Society of Medicine

    Key speakers incl " 3:00pm Session 3 Panel discussion featuring representatives from key studies researching the long-term impact of Covid on physical and mental health Professor Paul Elliott, Director of REACT programme and UK DRI Group Leader, Imperial College London Professor Nishi...
  11. Sly Saint

    News from Australia

    job ad Exercise Physiologist Institution Info University of New South Wales High St Kensington, Australia https://uniroles.com.au/display-job/21582/Exercise-Physiologist.html
  12. Sly Saint

    The European Association of Psychosomatic Medicine (EAPM)

    Merged thread Michael Sharpe about Paul Garner at the European Association of Psychosomatic Medicine (EAPM), 2021 3rd June 18 May 2021 Prof. Sharpe, Vice-president of EAPM, introduces Prof. Garner, keynote lecturer at the EAPM Virtual Conference 2021: Thu, June 3rd, 2021 at 15.45 CEST...
  13. Sly Saint

    ACTIB trial (Assessing Cognitive behavioural Therapy in Irritable Bowel): a multicentre randomised controlled trial, 2015, Chalder et al

    Cost effectiveness of therapist delivered cognitive behavioural therapy and web-based self-management in irritable bowel syndrome: the ACTIB randomised trial...
  14. Sly Saint

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    the current BACME Board https://www.bacme.info/sites/bacme.info/files/BACME%20Board%20Members%20Oct%202020.pdf some members details:
  15. Sly Saint

    ME in US medical school curricula

    didn't know where to post this: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Case-Based Learning Module Authors: Stephen J. Gluckman, MD it's on Medscapre and linked to on CDC website has anyone looked at it? https://www.medscape.org/viewarticle/927906 @EducateME
  16. Sly Saint

    News from Malta

    https://timesofmalta.com/articles/view/manoel-island-lit-up-to-raise-awareness-about-three-illnesses.871528
  17. Sly Saint

    Article: Gifts to make Severe ME sufferers smile posted in Merryn Crofts' memory by Smile for ME charity

    https://www.rochdaleonline.co.uk/news-features/2/news-headlines/140850/gifts-to-make-severe-me-sufferers-smile-posted-in-merryn-crofts-memory-by-smile-for-me-charity
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