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Introduction: Chronic fatigue syndrome (CFS/ME) is a disabling disease severely impacting school attendance, education, and social life in young students. Uncertainties surrounding CFS/ME etiology may impact the interpretation of CFS/ME in schools. Thus, school personnel need information from...

Characterization of IL-2 Stimulation and TRPM7 Pharmacomodulation in NK Cell Cytotoxicity and Channel Co-Localization with PIP2 in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex multisystemic disorder...

Abstract The findings of controlled trials on use of intravenous immunoglobulin G (IV IgG) to treat myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are generally viewed as representing mixed results. On detailed review, a clearer picture emerges, which suggests that the potential...

people can leave feedback without having to give their name or register. https://www.nice.org.uk/leave-feedback

links to AfME https://www.actionforme.org.uk/uploads/newly-diagnosed-booklet-dec-15.pdf from 2015 which is also out of date and ends with " Action for M.E. is enormously grateful to everyone who has contributed to this booklet, including: • Dr Alastair Miller, Chair, the British Association...

website funded by Scottish Government https://www.neurosymptoms.org/en_US/symptoms/common-associated-symptoms/fatigue/ See this thread: Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

Occupational Therapist "To participate in CPD and other departmental activities, including training in principles of Acceptance and Commitment Therapy and Mindfulness as appropriate." https://www.jobs.nhs.uk/xi/vacancy/916838125

transcript https://assets.fireside.fm/file/fireside-images/podcasts/transcripts/b/b68c1a5f-73fe-4072-b2de-e20e773c57d8/episodes/f/f4ffcf42-600a-4d3e-85d0-ccc27f76f00f/transcript.txt

Chronic Fatigue Syndrome: A Case Report Highlighting Diagnosing and Treatment Challenges and the Possibility of Jarisch–Herxheimer Reactions if High Infectious Loads Are Present Straub and Powers Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex multi-system...

website https://www.mapmecfs.org/ need to login to see the organisations/groups involved links to MECFS Research Network https://mecfs.rti.org/

Corona virus and blood donation: https://my.blood.co.uk/KnowledgeBase/Index/coronavirus%20infection https://www.blood.co.uk/news-and-campaigns/news-and-statements/coronavirus-covid-19-updates/ I can't see any mention of Long-covid patients. But very long explanation here "Long Covid ...

Organisation : National Advisory Advocacy Council for ME/CFS Research https://probonoaustralia.com.au/volunteer/treasurer-role-in-a-dynamic-new-science-focused-not-for-profit/

"The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and Wales*. We need your help to tell doctors and other medical staff that the recommended treatments for people with ME have changed. We want to get the...

Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating and often life-long condition affecting over 20,000 New Zealanders. Symptoms include muscle and joint pain, severe fatigue, unrefreshing sleep, hypersensitivity to light and sound, and cognitive dysfunction...

we don't seem to have a thread for Ireland Irish ME patients hope HSE will follow UK and scrap exercise therapy guidance https://www.thejournal.ie/me-exercise-5590653-Nov2021/ @Tom Kindlon @Brian Hughes

Re the video, I raised it ages ago, long before the new guidelines. https://www.s4me.info/threads/dialogues-for-a-neglected-illness-videos-on-experiences-of-people-with-me-funded-by-wellcome-foundation.6186/page-4#post-205561

why I said it should be top of the list. The NHS have reviewed and put back the old MEA video. The MEA could have at least come up with a new one that explains PEM properly there are several out there that could be used as a start point. But presumably they agreed to have the old one reinstated...

Merged thread Video: NICE u-turns on exercise therapy for ME sufferers: Alison Whale welcomes the move TWR-UK Alison, a blogger and advocate for people with disabilities and ME, tells Dave Piper that the use of GET and CBT originally came from an unwillingness by medics to believe ME/CFS...

NHS Southtees CFS service website unchanged "We combine the evidence-based approaches of graded exercise therapy (GET) and cognitive behavioural therapy (CBT), with activity (lifestyle) management. We offer a maximum of 12 appointments which may take place in a group setting or individual...