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  1. NelliePledge

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Even if he just read the MEAssociation purple book he would know a lot more about ME than he appears to currently.
  2. NelliePledge

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    I imagine now it’s a fully complete comprehensive NICE review including public consultation and draft guidelines ie Change vs last minute hissy fit from vested interests via arm twisting of Royal College bigwigs ie status quo, it could be a bit awkward in discussions with Private Eye editorial...
  3. NelliePledge

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    I think we were always going to have work cut out
  4. NelliePledge

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    They haven’t got round to making up a CBT programme for that yet
  5. NelliePledge

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Others already know this stuff but I found this article on bloodletting from Wikipedia enlightening. There’s a reference to a lecture in 1838 at the Royal College of Physicians. https://en.m.wikipedia.org/wiki/Bloodletting Can’t extract or link to specific paragraphs but there’s a sentence...
  6. NelliePledge

    Is catching Covid now better than more vaccine? BBC article

    Yes it is questioning the value of booster shots in already vaccinated adults vs having supposedly mild covid infection. Which in my opinion is bad enough. But it is also questioning whether children should be vaccinated at all - effectively back to the chicken pox party idea. Playing to an...
  7. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    I decided to take a deep breath and post it to my small group of FB friends and WhatsApp group - don’t do that very often at all. I did get a few for the original MEAssociation petition in 2017 to get the guidelines reviewed so hoping some will do this one too. ps it’s not far off 8500 now and...
  8. NelliePledge

    What diagnosis do you apply for disability with?

    Or maybe a general disability group. I know some people with ME in the U.K. who have found SCOPE supportive - it used to be a cerebral palsy charity but now widened its remit.
  9. NelliePledge

    What diagnosis do you apply for disability with?

    I can’t remember if Bulgaria is one of the countries @Mike Harley has been to & if so if he was able to make any contacts.
  10. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    @Gecko maybe can help?
  11. NelliePledge

    Royal London Hospital for Integrated Medicine: Physiotherapy for Chronic Fatigue (CFS), Aug 5 2021

    They are all hiding behind Miller the infectious disease specialist :whistle:
  12. NelliePledge

    United Kingdom: News from Forward-ME Group

    Would help if it is flagged up explicitly on the site that it is in development and how to give feedback.
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