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Apps are not a panacea

We know a few people in the medical community post awful opinions. As with any community including the ME community there are those who spend their time as negative keyboard warriors. Reddit threads like this don’t deserve our traffic or head space.

No shit Sherlock is the expression used around here :whistle:

Agreed but it should be their peers sharing it to make a bigger impact as we know they’re not all open to information patients get off the internet.

Kafkaesque.

Nice one Dr Zandi

Mr Trish :rofl:

Up/down to your usual standard :whistle:

Well done doctors with ME i hope this can be widely shared in your profession.

:thumbup: Pleased you’re seeing some progress, I’m still noticeably worse in terms of length of PEM than I was before getting Covid last autumn I’m hoping it will eventually reduce back to my normal.

Non response- how rude they need to go back to get another debate

Yep

Tut tut could be interpreted as catastrophising. I suggest some CBT………

So far since moving in 2019 I’ve managed without a stairlift largely because Im lucky to have a downstairs loo (one of the key criteria in my house purchase) which means most days I avoid needing to use the stairs more than once each way. Although I don’t rule it out I do have to be careful as...

More precious research funding down the drain of pace style “studies”

My hope for a project like this would be to enable symptom contingent pacing taken on board as the new status quo. I suppose if the end result turns out to be a substantial step forward from the current mishmash of some staff being more up to date and others still based on PACE mentality then...

Exactly hence saying no energy in the tank. The brain needs energy to function. I have so much more I want to be able to do.

@TiredSam although to be fair I’m assuming the reference to Afghanistan/Iraq was some time ago before the recent regime change in Afghanistan.

Lack of energy in the tank not about perception

I assumed their outcomes were based on the “improvement” :whistle: in our questionnaire responses. I definitely remember they had people sitting filling them right at the end of the last session in in the presence of the course leaders and I said I would take mine home and send it in as I...