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  1. J

    Beware creating a moral panic about antivaxxers Fiona Fox The Times 2019

    Article by Fiona Fox in The Times today. https://www.thetimes.co.uk/article/beware-creating-a-moral-panic-about-antivaxxers-jqrmhbtf5 Includes this: This is a familiar theme in the Spiked crowds' view of the world: against anything compulsory, claiming to be on the side of the scientists...
  2. J

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Her list of publications is interesting and includes: Neurotic Citizenship und das Problem der Somatisierung.
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    Physicians’ gender bias in diagnostic assessment of MUS and its effect on patient–physician relations (2019) Clareus & Renstrom

    https://www.researchgate.net/profile/Emma_Renstroem/publication/333340403_Health_and_Disability_Physicians%27_gender_bias_in_the_diagnostic_assessment_of_medically_unexplained_symptoms_and_its_effect_on_patient-physician_relations/links/5ce7cdeca6fdccc9ddca7ebf/Health-and-Disability-Physicians-ge...
  4. J

    Biological markers evaluated in randomized trials of psychological treatments for depression: a systematic review & meta-analysis (2019) Cristea et al

    A recent blog on this paper. https://digest.bps.org.uk/2019/05/13/there-is-limited-evidence-to-support-the-widely-held-belief-that-psychotherapy-changes-the-body-as-well-as-the-mind/
  5. J

    Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Chronic Fatigue: Three Distinct Entities Requiring Complete Different Approaches (2019) Twisk

    https://link.springer.com/article/10.1007/s11926-019-0823-z
  6. J

    David Tuller: Trial By Error: My Most Recent Exchange with Bristol

    For what it's worth, my approach would be as follows: I would separate the information-seeking from the complaints. For the information, I would contact the REC/HRA and explain that I had requested the info from both authorities and that both say they do not have it. Could they please help...
  7. J

    David Tuller: Trial By Error: My Most Recent Exchange with Bristol

    If so, then I would return to the VC and say Paterson is unable to help and you still have the following concerns...
  8. J

    David Tuller: Trial By Error: My Most Recent Exchange with Bristol

    My own view is that Paterson's response is entirely understandable and that a better approach would be to contact the University Vice Chancellor's office. http://www.bristol.ac.uk/university/governance/constitutionaldocs/senior-staff/pvc-research.html The questions being asked do not relate to...
  9. J

    More PACE trial data released

    I think #99 above addresses that better than I can. I just know from what they have been claiming as part of the arguments, they would claim a s12 exemption and that they would likely succeed in making it stick.
  10. J

    More PACE trial data released

    I believe that would be rejected as taking too long to provide. There is a limit of 18 (?) hours' work.
  11. J

    More PACE trial data released

    They should have been able to make the data correspond.
  12. J

    More PACE trial data released

    They are now in the Dropbox folder. https://www.dropbox.com/sh/f3nfolkh1hlw9kg/AACb78M_jA3Q_NoBbnbQsWvXa?dl=0
  13. J

    More PACE trial data released

    The original has now been taken down. Nick has created a new file with all the data together, but it the new data is clearly marked in red as not aligned and not to be used as if it were. There is also a new 'readme' file that repeats the warning. The latest files have also been uploaded...
  14. J

    Building an evidence base for management of severe ME (including sleep management)

    I wonder if the only way really to address this would be by a form of survey, just find out what patients feel helps them, how they feel the best way to cope is, what method they use to manage and perhaps have alongside that some activity survey as well but rather than the sf-36 type something...
  15. J

    Who is Simon Wessely?

    That's in his 'CFS' archive. The hysteria one is No.2 in his 'other' archive. http://www.simonwessely.com/index.php/publications/papers/
  16. J

    Building an evidence base for management of severe ME (including sleep management)

    This thread has confirmed for me once again that 'ME' is more than one illness. My illness was never a mystery and it involves a number of distinct phases: First, there is the initial viral illness. I feel 'odd' and my head is fuzzy. I continue to remain active, ignoring the symptoms. At some...
  17. J

    Assessment of the scientific rigour of RCTs on the effectiveness of CBT and GET for ME/CFS: a systematic review (2019) Ahmed et al

    https://journals.sagepub.com/doi/abs/10.1177/1359105319847261?journalCode=hpqa#articleShareContainer
  18. J

    Blog: The PACE Trial: How a Debate Over Science Empowered a Whole Community [Carolyn Wilshire/ME Association]

    Excellent blog, thanks @Carolyn Wilshire and anyone else who contributed. Not wanting to pile in on all those who did a great job, but some possible typos here. 1. Para 7: Para 15: From the trial minutes, these changes were agreed after the trial had been completed but before the data were...
  19. J

    More PACE trial data released

    Anyone able to help with this? @Adrian ?
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