Search results

My understanding is that the MRC is still working on this and is expecting that it will be available this year.

Hehe. Oops.

Thanks, Barry. Yes, I thought their quoting of the REC was very partial and indeed misleading.

Interesting. I didn't know of him, but he has a page on MEpedia. https://me-pedia.org/wiki/Gerwyn_Morris

Thread discussing paper by O'Leary: https://www.s4me.info/threads/ethical-classification-of-me-cfs-in-the-united-kingdom-2019-diane-oleary.8082/

I think it is about interpretation, so maybe you're right

I would interpret 'current' to mean that which is current, not 'the one that was current at the time the guidelines were written'.

The MRC Guide refers to the Helsinki Declaration, not to a specific version. The version of the Helsinki Declaration in force at the start of the trial is the 2004 one.

Declaration of Helsinki (2004) 13. In any research on human beings, each potential subject must be adequately informed of the aims, methods, sources of funding, any possible conflicts of interest, institutional affiliations of the researcher, the anticipated benefits and potential risks of the...

I think there is a difference: people say they feel better for all sorts of reasons. It doesn't mean that the treatment has been effective. On the other hand, even if these interventions only make people feel worse without any change in the underlying condition, then that is enough for them to...

I welcome the apology, but really hope @Action for M.E. will revise that wording. While a minority of patients may potentially find these interventions help them cope with the effects of the illness, there is no evidence these interventions actually treat ME. It is a big and important...

They have a history of doing that. I remember there was an editorial piece in The BMJ timed for the start of May in maybe 2015? One of my it's-not-true-but-it's-the-sort-of-thing-they-would-do conspiracies is that they organized mental health awareness week for the same month as ME when in eg...

Thread on this here: https://www.s4me.info/threads/assessment-of-bidirectional-relationships-between-physical-activity-and-depression-among-adults-2019-choi-et-al.7888/ Study: Assessment of Bidirectional Relationships Between Physical Activity and Depression Among Adults (2019) Choi et al...

Thread here on PEM may be of interest in considering guidelines. https://www.s4me.info/threads/is-pem-cumulative-public-thread.7922/page-3#post-140017 In particular two studies are mentioned (one a follow-up of the first)...

Yes, sure, I'd be happy to help with drafting, if you wish @Michiel Tack

Thought it was interesting about difference between self-report and the actometers.

https://jamanetwork.com/journals/jamapsychiatry/article-abstract/2720689

https://neurosciencenews.com/exercise-depression-10619/ I've posted this not for the headline story but two parts of it. One, they have data from 91,000 people who wore accelerometers, 91,000 people who didn't find them so annoying that they refused to wear them. Admittedly changes in...

I did a quick look and as far as I can see, Blanchflower's first post on the subject was this one: I presume he doesn't follow ME Action UK, so he must have gone looking for that tweet. Or been sent a link to it. He has not got involved in this debate by chance. No evidence, but my guess...