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What a blatant waste of money.

Yeah, I wondered how you could separate out the effects of removing high-glutamate foods from the effects of removing other ingredients and compounds also found in those foods.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5859338/ This is an n=1 case study, but this patient had IBS, fibro, and OCD (which I suffer with) and improved on a low glutamate diet. Edit. Just noticed one of the authors is an author of the study above. Hmm.

There's a myth in our community that we'd all recover under the right circumstances - avoiding PEM, stressors, being able to rest at all times when needed.

Of course, the largest of many elephants in the room is perhaps cannabis, which barely gets a look in due to lack of evidence (read lack of studies).

Yep, citizen scientists.

Do we know any more on the authors, apart from the details given at the end of the article?

Shut up and take this online course.

I experienced exploding head syndrome just the other day. A huge explosion woke me up. I googled it because it's happened a couple of times before, and it is clearly exploding head syndrome.

Merged thread "What on Earth is going on?" Homemade documentary on the Lightning Process I've never come across this before. It seems to be a homemade documentary by a lady whose daughter improved / was 'cured' by the LP. She goes to Norway to film a severe ME patient undertaking the LP from...

A psychological stressor or trauma is present in most people's lives if you consider their whole history since birth/childhood. You can always find something if you are looking for it. Why do some develop so-called conversion disorder?

Just to update: I submitted a Subject Access Request to the two different NHS Trusts that I have used, in the same way I did to my GP practice. Waiting on the information to be posted or emailed. Scan imagery is usually included and there was explicit mention of it on the forms I had to fill in...

I saw this last night. I find the whole thing quite strange. It is like an advertisement, but it's in an obscure journal that very few potential patients will ever see. A couple of things stood out: (i) There is no such place as 'Manchester University'. It's the University of Manchester. (ii)...

One reason is because Covid leaves some of these patients with clear lung damage and severe shortness of breath, and so exercise in these cases is counter-intuitive. Now it is for ME/CFS too, but the reasons why are much more complex.

I don't think it really says much. The NHS view on GET for ME/CFS is that it must be carried out by highly-trained individuals, which I find hilarious - as if the concept of slowly increasing the amount you do is some sort of great scientific revelation and not just common sense *for most other...

After-care needs of inpatients recovering from Covid-19 NHS, June 2020 Graded exercise is mentioned once in this document, from last month.

https://www.nice.org.uk/guidance/gid-ng10091/documents/interim-findings-2 "NICE is aware of concerns about graded exercise therapy (GET) for people who are recovering from COVID-19. NICE’s guideline on ME/CFS (CG53) was published in 2007, many years before the current pandemic and it should not...

It's a hypothesis paper with a title that states the hypothesis as fact. This shouldn't be allowed, and probably isn't is most reputable journals.

I say this everytime Lyme comes up in discussion, but what are the chances of having an ME/CFS-type illness and then getting Lyme ontop somewhere down the line? Quite slim, I'd say. People seem to search for a Lyme diagnosis because it is something that can explain their illness. Actually...

Charles Shepherd in one of his recent media pieces said that it seems there are some with a distinct post-Covid illness (shortness of breath, lung damage, etc), and some that seem to fit the ME/CFS criteria. For now, I think this is a good summary.