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I think it's plausible that impairment of this sort of mechanism could play a role in M.E.

https://www.sciencenews.org/article/sleep-may-trigger-rhythmic-power-washing-brain?fbclid=IwAR04YDRSjisQU_s9kY3aJLeB2KxdExrcE2mULFoE_kbR1fR3CfvZfxBjeVE Every 20 seconds, a wave of fresh cerebrospinal fluid rolls into the sleeping brain. These slow, rhythmic blasts, described for the first time...

So another paper from the Griffiths team. I hope they are going to be applying for some of the recently announced funding in Australia. At the same time, it would be nice to see M.E. research spread to other groups/universites in Australia.

Are there studies of searches for enteroviruses in the CSF of M.E. patients?

https://www.ucsf.edu/news/2019/10/415696/missing-virus-detected-dozens-children-paralyzed-polio-illness?fbclid=IwAR0ZxjldL12seSHAsSPsa2ynYLfKVUTWfyXryLHq03HmMv-bPQ2ZVwkYsP4

They've got the party-poppers out again. Very pleased we have a team working so hard on this but I hope these results won't be oversold...

I was just reading this wiki page on Cortical Visual Impairment https://en.wikipedia.org/wiki/Cortical_visual_impairment The overlap with some of the visual problems in ME stuck me. I have no doubt that most the visual issues in M.E are due to brain/visual processing problems. I really hope...

you should see the ME/CFS Facebook groups.....

Here is a picture of my hand when the area below the thumb is swollen and the vein is bulging.

I don't get the numbness, but I'm having real problems with the muscles in my hands below my thumb joint. The area goes slightly hardened and swollen, and the small vein there bulges. It started 18 months ago when I was working - probably triggered by typing and repetitive actions, but no doubt...

I don't know if this has been mentioned: Abnormal blood lactate accumulation during repeated exercise testing in myalgic encephalomyelitis/chronic fatigue syndrome. https://www.ncbi.nlm.nih.gov/pubmed/31161646

I think this is a plausible. Of course, there is the issue: are they saying Chronic Lyme could be ME, ME/CFS or CFS?

this was quite a shocking read recently https://phys.org/news/2019-09-turmeric.html

I may have gone to this combined service because they have physio and MSK teams which could have been useful. But the main reason is indeed the benefits issue. I guess I can say I asked my GP to refer me but the service has closed!

I just rang the number on the page. Not recognised. I then rang a different number—the one for 'Central Lancashire Moving Well'—and was told the ME/CFS service was indeed only for those registered with a GP in certain areas. Certainly not a 'Lancashire' ME/CFS service. Therefore, there is no...

This is my local service now https://www.lscft.nhs.uk/clmw-cfsme. "The CFS/ME Service aims to provide supportive, holistic patient centred advice to aid acceptance, education and self-management for adults with mild or moderate CFS/ME in Lancashire." It's been grouped, along with physio and...

I don't think that's the case. My GP would have been honest. I think it's because the provision has recently been changed. They like to pass the ME/CFS services around and regroup them etc. It drives me nuts, and yes, probably the GPs too.

I'd have thought they would have a system that directs the referral. Then again, this is the NHS and that would be far too easy!

It's strange. I asked my GP about the service I would be referred to, having had an idea already, and he came back saying one didn't exist. I now see this service is still going. Wonder why/how he missed it...

Does such a list exist, anywhere? I want to understand how patchy the system is for us. Thanks in advance. edit: have found a list here: https://www.meassociation.org.uk/nhsspecialistservices/ Not sure how accurate it is.