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  1. InitialConditions

    Neuro appointment soon.... Avoiding an FND diagnosis

    I've had an MRI appointment through and it's for a spine/cervical scan as well as a head scan. Quite surprised by that - was just expecting a head scan. Don't expect anything to be found, but glad the spine MRI will be done too.
  2. InitialConditions

    Glutamate / glutamine / glutamic acid

    Glutamate is indeed a neurotransmitter. Glutamine is a precursor to glutamate. Glutamic acid is another amino acid. It serves as the precursor for the synthesis of GABA, which is the inhibitory correlate to excitory glutamate. But glutamate is the metabolic precursor of GABA. It's all very...
  3. InitialConditions

    Tom Ingman (Research Student) - Chalders protege? bPS Nextgen

    until we have more people studying how we achieve recovery, rather than how we feel about recovery, progress will be at a snail's pace.
  4. InitialConditions

    Tom Ingman (Research Student) - Chalders protege? bPS Nextgen

    oh christ. just when I thought the Chalder group's research couldn't get any more pathetic, they add a nice dose of identity politics.
  5. InitialConditions

    BBC Radio 2 Jeremy Vine Glandular Fever / M.E. discussion

    https://www.bbc.co.uk/sounds/play/m0008ps8 From today's show. At 1:10:00 onwards there is a discussion on glandular fever that soon touches on M.E. The discussion is actually quite good - the expert (Dr Sarah Jarvis) describes the risk of glandular fever developing into M.E. and describes M.E...
  6. InitialConditions

    Neuro appointment soon.... Avoiding an FND diagnosis

    Yep - I get that. I've seen ENT specialists about it over the years. My point is that it shouldn't be simply an ENT issue. Ironically, the end point of presenting with unexplained tinnitus is an ENT specialist sending you for an MRI scan.
  7. InitialConditions

    Neuro appointment soon.... Avoiding an FND diagnosis

    I had my appointment yesterday. As expected, it was pretty underwhelming. The consultant wasn't personable in the slightest and came across as dismissive. There was no in depth discussion of my history, and he paid no real attention to my ME diagnosis. He conducted some routine, very...
  8. InitialConditions

    The role of infections in multiple sclerosis - Marrodan,Alessandro,Farez,Correale Jun 2019

    i think at some point the medical community has to wake up and realise that once an initial infection is gone, even from 'trivial' pathogens and viruses, that's not the end of the story....
  9. InitialConditions

    How ME/CFS Progresses: A Framework for Research and the Prevention, Treatment, and Rehabilitation in ME/CFS Nacul et al 2019

    I also had physical symptoms before any cognitive symptoms. And IBS many years before that.
  10. InitialConditions

    Neuro appointment soon.... Avoiding an FND diagnosis

    I have a neuro appointment next week because the past year I've had some pretty horrible 'neuro' symptoms including ongoing tinnitus and vision issues. I worry that the consultant may push an FND diagnosis. We all know this is the flavour of the month. There is of course overlap between my...
  11. InitialConditions

    Article: Recovering from chronic fatigue syndrome as an intra-active process, 2019, Synne Groven and Dahl-Michelson

    this stuff is all the rage in humanities departments. they call it ethnographic research or something. it's an absolute travesty that millions is being spent on stuff like this. follow New Real Peer Review on Twitter to see them call out this crap. you can literally get a phd now by writing a...
  12. InitialConditions

    UC50/ESA50: How your disability affects you

    Thank you. I have been active on the FB group. It's a good resource.
  13. InitialConditions

    UC50/ESA50: How your disability affects you

    I was wondering if anyone would like to share their response to this question from a successful UC50 (or ESA50) application, or has a template for the response. Failing that, are there any good resources for answering this question? Primarily, I am interested in what to include here, the level...
  14. InitialConditions

    Tinnitus treatment and management

    For me, tinnitus came as one of my first symptoms when I first became unwell in April 2012 (probably not M.E. back then). I have not had one second of silence since, and although you do learn to cope it is a bloody nightmare.
  15. InitialConditions

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    I see Tom Kindlon's submission has a nice table format. I have asked if he can lend me a template!
  16. InitialConditions

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    I am putting together a submission for one of the registered stakeholders. Does anyone know if there is a template which we can work from for the document submission?
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