Search results

BPS lot on display in the basement.

That's true. There is unfortunately still a stigma RE the ME 'brand'. I remember a story in a local newspaper about a volunteer who raised only £10 when collecting on the street.

What I'm saying is I have absolutely no idea how much return you would see from employing one more fundraising staff member. It must exceed the salary/costs but I imagine it is of the same order of magnitude. There's no real way of quantifying this because everyone works as a team. The type of...

This is something I too have wondered about. What would be interesting would be to somehow get a cost–benefit analysis of fundraising activity. You could go the other way and ask: is 20-25 grand a year (after costs, pension?) worth it for a small charity?

Im 32 and it seems my record goes back to 2011 (not sure why only then). I assume that's the time electronic records started to be used more widely. The law is now that they must provide you access for free. Production of new material (e.g., letters) and printing may be charged.

well it seems you have what I expected to have - namely GP notes from consultations.

Luckily, all I had to do was email my surgery's reception a Subject Access Request. A day later my Patient Access portal had new info that was previously hidden. Unfortunately it's not my full record!

So all the notes the GP makes in a consultation or after, has anyone seen that in their record? My 'documents' simply comprise scans of correspondence between my GP and other departments / consultants in hospitals.

This is so frustrating. There is literally no standardization. At my surgery when I lived in Reading last year I had blood test results on the online portal (which was Evergreen Life), without asking for access to my medical record. Now I've asked for it and I have absolutely no blood test...

To those UK folks who have obtained their medical records: What was included in your records? I have been given access via Patient Access - one of the four portals that the NHS now uses. I have essentially been given documents - mostly scans of correspondence between my GP and consultants /...

Despite not being in the US, this is the sort of handout I'd take to my doctor. Clear, short, and to the point.

Have S4ME submitted a response to such a request before? And if so are these documents available to view?

ok well there'a a suggestion from me. I can't even remember the details of the survey and report but I assume you know what I am refering to! EDIT: It was from Forward ME

RE Point 2, What about the survey results that were analysed by Oxford Brookes researchers? Can this be submitted?

I assume S4ME make a submission to these types of requests. Can someone briefly outline how this works?

Most academic research projects have a timeline of roughly three years, with results expected in the third year. This is of course variable.

I couldn't have put it better myself. With Hyde, it was an obsession with brain scans and enteroviruses.

Doesn't sound good. Grateful for some of his work, but he sounds like Canada's Myhill. Lots of grandiose claims about the disease and its etiology/pathology, lots of annecdotal evidence, a steady stream of desperate patients...

I was worried about this with the last MRI I had, about a year ago. Don't think it had any effect, but the 'rush' feeling when the liquid is injected is quite bizzare.

He's absolutely all over the show...just for a change. Just found this article from the Spectator (sorry...) where he claims the Perrin Technique is causing him to have weird mental symptoms. In it he confuses lymphatic massage for limbic massage - and thus uses this to explain the change in...