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    United Kingdom: Science Media Centre (including Fiona Fox)

    It's spot on. I hope it felt as good writing it as it did reading it
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    United Kingdom: Science Media Centre (including Fiona Fox)

    It does feel time. Sometimes there are points where people go so far over the line that they are trying to set new precedents about what is acceptable and what truth is. My gut says we need to be smart here, but that highlighting this - certainly from the perspective of history once those...
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    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    I think that long covid is being used as a trojan horse by the same individuals, as well as it obviously being a big prize in itself. Two bites at the cherry so to speak by them realising that the ME guidelines were perhaps long gone they've been fighting tooth and nail to delay, delay and...
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    Functional Neurological Disorder (FND) - articles, social media and discussion

    If that is the case then there is enough work going on in certain parts of psychology that look at the processing involved in movement - particularly with things like stroke or brain injury or illness - for that to be significant. I'm thinking with the forward and backward processing involving...
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    LTSE - Long Term Symptom Exacerbation - Type 2 ME or New Diagnosis?

    It's a weird set-up in the UK. There is a shortage. We hear of the police picking up some with mental health issues (not the ME sort of situation I don't think, but on news programmes) and them being stuck in police cells short-term. But because most psych beds nowadays are actually private...
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    Functional Neurological Disorders and COVID-19 Vaccine: a Call for Action, 2022, Fung and Fasano

    What a laugh! Yep looks like the mental map that is a no-win trick for 'wrong-face' people who walk into the door of certain physicians, sort of useful to have it diagrammed out As you say no numbers on the time axis, so over your entire life: predisposing factors include: education...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    I don't know if she had other jobs elsewhere but I know that she started out doing PR for a college/uni. In that instance the 'PR dept' would be providing access to scientists in order to increase the profile and reputation of both the scientist and the organisation, and maybe to fulfill...
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    FII (fabricated and induced illness), and the new ME/CFS guideline

    There is the following article from Sean O'Neill from June 2020: https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt which is ME-specific and goes onto talking about FII more but includes the following: "Hundreds of families whose children...
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    FII (fabricated and induced illness), and the new ME/CFS guideline

    OK thanks. Most of my impression of this issue has been from news articles I've seen of recent years (not all from the ME side of things). I'm adding up the issue covering those under the austistic spectrum and whether there are also other certain conditions that would tend to be vulnerable to...
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    Open Medicine Foundation (OMF)

    I noticed that decrease in impedance for all conditions where it wasn't healthy cells in healthy plasma. Which is where it got me thinking what the nanoneedle is precisely measuring and whether it was the salt. e.g. wondering whether even for the me/cfs cells in healthy plasma did they 'wash'...
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    Open Medicine Foundation (OMF)

    I'm going round in circles imagining the set-up because that was exactly what I assumed at first thought, but then thought it didn't sound 'clean enough' in relation to the conclusions/description. I also then start thinking what is the concentration of cells to plasma to salt and whether...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    That's interesting. Because it doesn't focus on the truth issue - but really emphasises that this is about the PR industry surrounding medicine. If you think about it, from her and the SMC's job point of view, it is a fantastic advertisement. They are in PR and the truth seems to be that those...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    I'd be surprised if it means anything at all legally? I certainly remember that we were warned re: CMA regs that you could no longer just use disclaimers to cover up not providing required information accurately (and we have to be able to reference any figures etc claimed) I also note that...
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    Open Medicine Foundation (OMF)

    Thank you. It's pretty relevant stuff to define in the methodology it feels - I tried google and was surprised that I didn't just get the answer. I've seen an engineering-related paper that talks of nanoneedles that can go inside (but then that just throws various other questions in my mind)...
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    Open Medicine Foundation (OMF)

    Am I right in assuming that to measure impendence they are using the nanoneedle to penetrate the cell itself? and how do they get salt into the cell without it going into the plasma, and would it matter if they did?
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    FII (fabricated and induced illness), and the new ME/CFS guideline

    Yes I've added in the word 'staff' but still not sure how it reads (or how to rectify - yesterday wasn't a good day noise wise). What has been the cost so far of FII when you total up everything involved for all the cases put through this (at any level of the process)? So you've potentially...
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    FII (fabricated and induced illness), and the new ME/CFS guideline

    How this can claim 'it might reduce the need for safeguarding interventions' (when that sounds like exactly what it is introducing) when it notes it 'lacks sensitivity and specificity'. Isn't the 'hard job' of social work being able to identify, well, the cases where terrible harm could occur...
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    Mental health outcomes in patients with a long-term condition: analysis of an IAPT service, 2022, Moss-Morris et al

    It's just an unkind and unscientific or even logical 'solution' to a 'problem' come up with by narcissists who like to use phrases like 'playing the victim' whilst normally engaging in antisocial or inconsiderate behaviour towards said person. When I was doing my BSc Psychology I would say...
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    The biopsychosocial model is lost in translation: from misrepresentation to an enactive modernization, 2022, Stilwell et al

    the arrows got reversed, basically to make it look like the patient is the one causing all the nonsense of financial, social (e.g. bigotry, lack of support) - I still don't get how changing the way the 'victim' thinks ever conned anyone as a solution. I can't find any way of getting more than...
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    Open Medicine Foundation (OMF)

    You've got me thinking. The latest message that I got was that it was the plasma (below copied from: https://www.virology.ws/2019/12/16/trial-by-error-simon-mcgrath-on-ron-davis-on-something-in-the-blood/) "As in the previous graph, impedance shoots up for ME/CFS in their own plasma, while...
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