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Peter on here, who was asking about 25% stat?

Didn't the person running the service change in the last few years? If so I'd assume they got in someone who has no idea what they are doing and are ignorant. What is happening? Is it just deliberate subversion? the CFs/ME is even new to them so I suspect so - and that should be enough to lead...

Who made it? If a person you are able to respond with in this way, given it is a law class, then I'd demand that they show you it. At least that way they can prove what they are referring to and you can answer on that exact 'proof' directly.

I have no background in law at all. But have just looked up the case summary here: https://www.lawteacher.net/cases/page-v-smith.php It is interesting that it isn't until the latter paragraphs that psych words came in (so it feels like these were terms more to describe the 'mechanism' via which...

Indeed - I had it and GP misdiagnosed several times and then when accurately diagnosed by seeing the right person who had ENT experience (that's EBV, are you sure shouldn't I have a test? NO.. it's DEFINTELY EBV you can have a test but that is just for the sake of it when you are already so ill)...

It is like the ambiguous use of 'optimism'. There is realistic optimism where you are actually really truly being optimistic despite your situation "my life's awful but hey ho at least I still have my hair" vs telling someone off for not lying about their life or situation "we don't want to hear...

Interesting, she says they are a very small organisation with only 5 press officers (plus other staff/management I can assume). But this is equivalent to many/most (?) university PR departments, and I'm not sure that the work they are doing is any different or would call for more for any reason...

In medicine that may be the case. However, quite often in other scenarios a complaint direct to the organisation itself is a required first step before going up ladders to regulation and the like. Probably worth getting all the ideas together and seeing what process is involved with what route etc.

Bingo

Yep - is 'mercy' more appropriate? Having said that I think that those who have been involved with developing this service in particular seem to have done better than most. I do agree that 'hope' just because someone will not gaslight you, and will write letters confirming you have a condition...

I got told to go to the gym when I was first diagnosed. That first trip every time I stopped each activity I had to go to the changing room in a hurry and half-blindness to lie down (and just got there in time before passing out), this happened 10+ times. It just so happened the next time I...

Do you find that it is nothing to do with what you've eaten that day (Ie as you say not low blood sugar causing it) but what you've just done re: exertion (but feels like 'empty' energy cells) and only a hit of basically pure sugar works, and even then only for a short while and needs to be...

Yes, I think anything that focuses on quietly informing those involved at this stage and seeing whether this is 'inadvertent/ lack of oversight' or agreed with etc. finding out what they feel on it right now and making sure they are aware is insightful I think. I was just looking up to see who...

Sounds like a good idea to me. It seems that in the end the Charity Commission was a key element in sorting out the Very Rev Percy/Christchurch thing, with them being particularly concerned about the amount of money being spent/use of funds for something that wasn't 'of benefit' to their mission...

It is actually quite an unusual situation - it is a book all about the SMC, from the person who runs it, who is still in post. It is a situation where those reading it would legitimately assume that she at least had to get approval from what is technically her employer to keep her job as it is...

Indeed - any word such as 'accurate', 'critical', 'thinking', before the word reporting might at least have meant something Without this I assume it means 'pushing studies of whatever quality at the media' I think the phrase 'evidence-based' probably needs to be dropped by NHS and those who...

Agree and the written highlighting of issues is important as it negates deniability under claims of 'we somehow didn't know' if there is written evidence of it being simply and straightforwardly pointed out to those individuals. Many in senior positions prefer not to be copied in on emails or...

From what I can see (and I was thinking was there a regulator) they've nicely situated themselves to be technically a PR agency - so not governed as being 'news/media' like ofcom/press standards etc but also not technically marketing anything (? although they are - they are just marketing it to...

I just thought it seems unusual even for this sort of thing to have aliases doesn't it?

hmm when the second email she jammed a 'I feel so bad I did that' into the bottom of came up I thought that was no accident, she knew full well it would be read. What she was doing making the call only she knows