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I am beginning to think there needs to be some sort of charter just in order to make sure that the plight is logged accurately for each person with the illness (probably MUS or any other new variation they come up with together in order to cover the pots people get chucked across) and...

What you suggest sounds pretty viable, and makes me think of when you see on a TV programme someone put into induced coma to heal - now I'd be interested to hear the science and reasons around those scenarios. It's an energy-limiting condition. It should make far more sense than many of the...

even worse when you think that she probably believes it

Hopefully, but yes, I feel comforted that if so we have someone with the right quals given the right position to put together a 'this is how it could look' so that we don't get games + politics (with small 'p') being played or it being handed based on the person vs the science. Currently some of...

Just tried to see if there is anyhing but just directed to a wordpress site that isn't up and viewable yet.

100% agree. It's basic isn't it. To the point you assume that they would have done at least some of it, by virtue of the system must log these things somewhere. How many who go into what is a known dumping pot were diagnosed with something else later on - including comorbidities and misdiagnosis...

is that a good thing?

Any idea of whether anything might have triggered the switch other than time? Mine has been, ironically, only when hygiene is enforced (or short times e.g. recovering from travel or over-exertion), but not to the extent you've suffered by the sounds. I basically got sicker due to it (overdoing...

Yep it is funny how so many so qualified can miss the penny-drop moment that it is the equivalent of trying to map a diabetic's various cycles without controlling for the insulin issues/ignoring them. There are probably better analogies. But if light absence is so key it sends a blind person...

Someone needs to publish these somewhere the general public useful idiots who talk mind-body having sucked it up read. With the clear message that this is where their beloved ideologies came from/just more carefully veiled now.

Agree. That one of course seems remediable. I asked a UK academic friend of mine regarding research methods, reliability etc at her place (given there isn't a quality assessment, certainly outside REF times of year) and she replied that it is a worry but her place did have a process of internal...

Loads of possible answers. Public engagement is something that academics are encouraged to do, research costs, professional development and so on; I'm unsure how rigorous the sign-off would be for trips relating to such - and it would probably depend on not just university policy but how...

Looked this one up as an explanation for 'useful idiot': https://unherd.com/2018/06/six-types-useful-idiot/ Maybe I'm just niche in finding this interesting. It lists 6 types as being: the seeker, the utopian, the power worshipper, the relatavist, the stability-fetishist and the nostalgist...

Yep they've just come up with more thinly veiled terms like 'mind-body' for allowing people to be ignorant to others' faces and claim superiority. Instead of them seeing what harm they've caused.

Some big questions I think are timely and relevant are: - how many suicided/attempted rather than end up somewhere that would do their health more harm (and maybe remove their voice) ? Or all the variations of threat this is used as to prevent access to support stated as the issue at hand - I...

The authors note that this is important work to look into those who attempted suicide and that data is tricky because ME (and suicide) is not always diagnosed nor on the death certificate. I would be interested to see data for all deaths but given what we know re: ME diagnosis (and likelihood of...

Agree with the second tweet 100%.

Wow this is just one big hard-sell (I refuse to use the term marketing because technically that requires an orientation where the product meets a need the 'customer' has...properly/well, unless as we might suspect the 'customer' isn't the patient) strategy. Page 10 particularly concerning...

I don't have a question formed, but just discovered the following presentation by her: https://www.lstmed.ac.uk/news-events/seminars-and-lectures/why-you-shouldnt-believe-what-you-read-in-medical-journals It is from Nov 2017. Some very interesting stuff from 36minutes onwards looking at the...

Agree about it being technically correct - if you he is talking about the original 2007 guidelines. Goodness knows what he thinks he is adding anyway? other than more of the same tactics. I suspect that they've seen him in the bracket 'useful idiot' (as I suspect Chalder is), and am intrigued...