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That, given our situation, is a very important point to make and warning to bear in mind

I like that idea as a place to look for inspiration. Second the power bit being as important as the energy bit. Also feel the part that eludes people is continuing to 'function' (although you wonder how they don't see it in you when you catch yourself in the mirror) when you are way past your...

Get exactly what you are saying. I think it was certainly taken on by the business literature to describe people as 'time poor' (convenience mattering) as well as money poor or whatever. I don't think other people can get their head around what 'energy poor' means though. I think it needs to...

Yes reminds me of the annoying (even the OH person said that) computer programme that shut your screen down every 15mins for a short time period 'to give you a break'. You can imagine the scenarios where you are mid-email or something and you end up having to re-read the whole thing to get back...

I think that last line of yours is important. Just as they develop synacthen test type things to differentiate secondary from primary in those various illnesses, are there any mechanisms that could be probed to separate these out? I guess just like with those conditions it could be that there...

I guess if you read between the lines is he saying that cognitive techniques have no way of doing anything for ongoing/active immune activation and vascular dysregulation - so where these are generating the symptoms no difference would occur? But yes what is he including in 'secondary autonomic...

I wonder whether this is another issue with genericising everything under 'brain fog'. 20mins seems a feasible timespan for someone to be able to say talk and answer questions before cognitive fatigue kicking in - at which point it isn't my attention that is the issue but being able to find...

Yes, sort of, I didn't explain it well there are circumstances where you cannot rest as you need to and pushing through means adrenaline (which you might need). I agree with your differentiation - it happens because you've gone way over baseline but the crash, and the size of what it will be, is...

I hate the term brain fog. Tome it feels so naughty because there are specific types of cognitive impact that are all very different and easy to differentiate and describe to someone who is actually interested. Brain fog sounds like reducing cogntive fatigue when I have had too many complex...

I'm as cynical about some of what he has suggested as you - and worry they have got the wrong end of the stick by presuming order of things and reasons from observing rather than getting insight from patient in the body. Having said that, if I have to do something far far beyond my baseline...

Good point. People only know what something is from the information thye receive on it. I think this attitude from LC people just shows/reflects how terrible the discrimination and bad misinformation is still. How the job of getting across anything new about what it is has not been done. New...

Same people sound like they are ignoratn-arrogant enough to take people who've been in wheelchairs for decades and think they just need to spend 20mins coming up with a few naive presumptions to give them tips on how to make their wheeling better. Which apparently some people in this world do I...

It just sounds like cult-speak

Love the fact they've tried using bullet points to make it look like one leads to the other/these re connected. Do people who get flu lose 30% of their muscle mass then? Is there nothing like the CMA for medicine? A company stating something inaccurate (particularly where unreferenced) would be...

That's disturbing. PEM/PESE is the kryptonite to the fatigue/mind paradigm BPS are trying to push for ME/CFS. Trying to basically use the advertising theory to hijack PEM so that people think you are mis-saying post-exertional-fatigue because THAT'S what they've had imputed into their memories...

I know this is retrospective that I've found this (I found it as I was wondering who on earth this woman turner-stokes is that is on the Jan 2021 FOI release). However, from what I can she her sudden 'interest' (doubt she spent more than 5mins cribbing something to put down on the sheet that is...

it is like a metaphor for the whole lives being wrecked by dead-headedness of medics with ME what they've done here. Some idiot not remembering that extrapolating forward and indeed inference is based on ASSUMPTIONS. Drawing the lines past this point of 'this is what happens when someone goes...

:laugh::laugh: weird isn't it - you'd think more of them would admire the Oliver Sacks stuff and have (if they didn't innately have it) learned to look into that. Their attitude seems so backwards looking to decide that insight from the person living in the body is 'irrelevant'. Someone is...

Yep the anxiety idea is always a laugh. Even in the most stressful of times when you actually need to think about things or give yourself time to stress the body just carks out eventually like when you can't finish watching a film from exhaustion - it's the one illness that it would be hard to...

The brainwashing seems to have gone so far (by making most medical professionals say 'the mind affects body' to refer them off on a pathway so many times a day I assume indoctrination of the sayer occurs where they assume they believe and understand it) that even established professionals now...