Search results

Could that basically mean a test that is less damaging, and certainly more safe esp for those who are mild, is actually possible from this? I say mild because imagine how powerful it would be for those who (and many have been there) do the pushing through etc. I know workwell use the example in...

Two big reasons: 1. the CFS description was such a weird hypochondria mixed with 'exercise avoidance anxiety' along with actually prescribed in the guidelines orders to 'not investigate' I'd suspect many think they have something else that simply has never been 'gotten to the bottom of'. 2. the...

Ohhh so naughty. And sinister having the biopsychosocial screenshot crowbarred in so many times. It feels like an obvious PR to try and cover for 'why are we still offering the same old thing, and how can we rebrand it as 'no, it's not that old thing''. Just try and come across like gentle...

I think that all this terminology needs clarifying but in a 'process list' type format (diagram or something). We've got PEM, and rolling PEM (which is effectively the state in which most with ME probably have to live in), and those in rolling PEM can have 'PEM' on top of that. Then there is...

Worth a read of this report. I found it so frustrating. Basically confirms the same crux of the issue. Forward ME have got a big job because it looks like denial re: BPS approach whilst claiming they don't see the illness as psychological lurks large in this report. And so difficult to post a...

United Kingdom: ME Association RCGP Meeting – General Practice and the new NICE guideline on ME/CFS Report on a meeting held on Thursday 16th June between Forward-ME (FME) and the Royal College of General Practitioners (RCGP) to discuss implementation of the new NICE guideline on ME/CFS in...

"ACTIVATE adopts a primarily hands off approach to treatment aimed at motivating and educating service users to manage their condition more effectively and utilises both individual and group-based interventions" There isn't an emoticon for my shock at this. I can't think of anything more...

Interesting. I've had a poke around old fb posts to see further. It maybe is a more mixed picture of recent times (I found a post as far back as 2012 when Pinching left when it seemed that was v biomed led, then more mixed since then) I've found this which was the MEA post about needing a new...

It is Cornwall I'm thinking of specifically with this because I believe that the service until very recently was seen as a very good one that was safe. I know that the person running that left but I don't know how many years ago, just remember the job description being discussed on somewhere...

happy to pee money up the wall on something not in the guidelines whilst claiming they are short of both cash and staff in implementing the necessary care for patients who might be at risk of dying, and unable to provide basics to mean someone can live independently safely. All I can think is...

Sicko stuff really isn't it. How can conversion therapy for certain things be rightly getting outlawed and slated and yet this type of awfulness is sliding in under the radar and being funded by taxpayers and done by people claiming to 'help' or care about physical or mental health...

I don't know why those interested in mental health or psychology can't just be happy/see it as sufficient part for them to play to point out that those with autonomic dysfunction should be treated better ie the lack of psychological uplifts is a harm in itself. If mental health matters, and...

More sophism then. Bring in psychological therapy based on the claim it 'recovers' people by using false-beliefs CBT then when that is debunked as being a type of conversion therapy for an illness that is real claim that psychological therapy is still due based on the terrible, damaging therapy...

Important start to flag this. So worrying (and the fact that noone really knows or notices this issue beyond ME community) that severe ME aren't included in clinics or research. Out of sight out of mind. The methodology acting as a filter effectively is an issue that needs to be flagged up in...

Agreed. It feels like there is a story behind that one given it would seem obvious some severe ME have ended up in certain situations. It 'seems' like the artificial divide to the extent of separate services has little justification and would hinder understanding of the fuller picture of the...

I don't/haven't had any direct experience but it seems worth flagging further afield as a question (maybe MEA could ask) given the context of it being awarded in April 2022 via this process. And thinking of previous notes elsewhere about how contracts can sometimes make it difficult for things...

Good article. Very much needed to be said. My few thoughts: - part of me wondered whether IAPT would 'eat itself' if going into more and more remote and scripted formats such as online with no person at all. Whereas the 'selling point' in CBT when debating it vs counselling was always that 'it...

Just looked up his constituency is North-East Cambridgeshire. It looks like Cambridge has a support group too but don't know much about that part of the world and whether that will likely cover it/have many from there. Or if they know him already to give an idea?

EXactly - remove ME (and any claims to guidelines and research not being debunked) and they really have nothing. It's just an exercise and think better house to send 'whoever' to that doesn't check what people have when they enter or monitor the safety or health of those once there. There is...

Can they in the interim change the patient cohort? And yes they need to work out how to get out of these things if there are renewal assumptions etc. and no changes in treatment are possible The only people these services seem safe for are those who don't have any health condition as far as I...