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Now at 11,262 signatures. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Unfortunately not. As explained in the blog that forestglip linked to above, third-party supplier delays forced us to apply for an extension of a year from our funders.

Dave Tuller on Twitter has tweeted "This article is highly problematic, as I noted when it was published. The author argues FND is like a brain "software" issue and that I have misinterpreted the science. Our comment in @statnews serves as a rebuttal." Dave et al article, Functional...

Full title: Biopsy samples from patients with irritable bowel syndrome, but not from those with mastocytosis or unspecific gastrointestinal complaints reveal unique nerve activation in all gut regions independent of mast cell density, histamine content or specific gastrointestinal symptoms...

Full title: Neuropsychological functioning after COVID-19: minor differences between individuals with and without persistent complaints after SARS-CoV-2 infection Objective: It is unclear how self-reported severe fatigue and difficulty concentrating after SARS-CoV-2 infection relate to...

Now published: linked here Preprint Abstract In classical amyloidoses, amyloid fibres form through the nucleation and accretion of protein monomers, with protofibrils and fibrils exhibiting a cross-beta motif of parallel or antiparallel beta-sheets oriented perpendicular to the fibre...

Long COVID & Chronic Fatigue: The Similarities are Uncanny "An estimated two million people in England and Scotland were experiencing symptoms of long COVID as of March 2024, according to the Office for National Statistics. Of these, 1.5 million said the condition was adversely affecting their...

From their website, APPG OFFICERS o Co - Chair – David Mundell MP o Co - Chair – Baroness Barker o Co - Chair – Steve Brine MP o Co - Chair – Florence Eshalomi MP o Treasurer – Lloyd Russell-Moyle MP o Vice Chair – Lord Fowler o Vice Chair – Lord Black of Blackwood o Vice Chair – Lord...

Published papers thread for w/c 8th July. Facebook: https://www.facebook.com/sci4me/posts/pfbid0VK38zr4M4xZMKVgx1jBJbP7k7nnpMpkiXbxyA74KQsSPXB7moGCjx8pvnj662nGVl Mastodon: https://med-mastodon.com/@s4me/112789815810711497

Trial By Error: More Debate About Treatment of Severe ME/CFS "Last month, Jonathan Edwards, an emeritus professor of medicine at University College London and an advocate for patients with ME/CFS, published a statement on a pre-print server about managing the nutritional needs of patients with...

News in Brief post for w/c 8th July. Facebook: https://www.facebook.com/sci4me/posts/pfbid02tBPmh2R2gcXu2AqztzNZyQAuCmt4FPVDB4GbKbQtSP5uN4GU6LiKvCf3UaiQ6nbal Mastodon: https://med-mastodon.com/@s4me/112784086301307529

Abstract Background Functional somatic disorders (FSD) are a common problem across medical settings and remain challenging to diagnose and treat. Many patients with FSD undergo sequential and unnecessary extensive diagnostic work-up, which is costly for society and stressful for patients...

Summary Background International guidelines have recommended cognitive behavioural therapy, including acceptance and commitment therapy (ACT), as it offers validated benefits for managing fibromyalgia; however, it is inaccessible to most patients. We aimed to evaluate the effect of a 12-week...

Abstract Since 2021 experts advocate for the abolishment of the term Medically Unexplained Physical Symptoms (MUPS) and the use of Persistent Somatic Symptoms (PSS). This article elucidates the difference between MUPS and PSS, as well as the relation to other relevant concepts like functional...

Abstract: BACKGROUND: Long-COVID refers to a variety of symptoms that continue for at least 4 weeks following the onset of acute COVID-19 infection. “Microclots/microvasculopathy” is a potential cutting-edge theory. Nailfold capillaroscopy is a non-invasive method used to assess...

"https://tinyurl.com/OpenResponseNFSevereME… An open response from parents and carers of people with Severe Myalgic Encephalomyelitis to ‘Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206’"

"A formal diagnosis can help patients and families by identifying the reason for the condition and connecting them with others to form support groups. For scientists, knowing the genetics of an NDD paves the way for broader testing and research on future therapies."

Scientists uncover genetic disorder that may affect thousands around world "A genetic disorder that causes severe disabilities in children and adults has been discovered by researchers who believe the newly identified condition could affect hundreds of thousands of people around the world...

Abstract Around 60% of individuals with neurodevelopmental disorders (NDD) remain undiagnosed after comprehensive genetic testing, primarily of protein-coding genes1. Large genome-sequenced cohorts are improving our ability to discover new diagnoses in the non-coding genome. Here, we identify...

Endometriosis needs to be treated by NHS as chronic condition, experts say "Endometriosis should be treated as a chronic condition by the NHS and taken as seriously as illnesses such as diabetes and bowel disease, experts have said. A study looking at the quality of care provided to adult...