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Update on the APPG on ME "Following the general election, Action for M.E. and the ME Association have provided the following update, as joint-Secretariat for the All-Party Parliamentary Group on ME. “We understand the need to ensure that ME is kept firmly on the agenda of the new Government...

Full title: One or many labels? a longitudinal qualitative study of patients’ journey to diagnosis at a specialist NHS Postural Tachycardia Syndrome (PoTS) clinic Abstract Objectives Postural Tachycardia Syndrome (PoTS) is a poorly understood syndrome of multiple disabling symptoms. This study...

NHS patients raising safety concerns too often ‘fobbed off’, says commissioner "NHS patients raising safety concerns are too often “gaslighted”, “fobbed off” or dismissed as “difficult women”, according to England’s patient safety commissioner, who criticised health leaders for a “relentless...

"Patients’ concerns about substandard care are the “canary in the coal mine” but too often go ignored, the patient safety commissioner, Henrietta Hughes, tells Erin Dean When thinking about the difference patients can make in improving care, Henrietta Hughes recalls a recent visit to a stroke...

"ME Research UK is pleased to an announce an open call for applications from researchers wishing to investigate the causes, consequences and treatment of ME/CFS. Funding is available to support biomedical studies at appropriate host institutions worldwide." "Timetable The deadline for outline...

ABSTRACT Dengue virus (DENV) infection is known to affect host cell metabolism, but the molecular players involved are still poorly known. Using a proteomics approach, we identified six DENV proteins associated with mitochondria isolated from infected hepatocytes, and most of the peptides...

Full title: Exploring the course of functional somatic symptoms (FSS) from pre- to late adolescence and associated internalizing psychopathology – an observational cohort-study Abstract Background Functional somatic symptoms (FSS), which commonly cannot be attributed to well-defined organic...

"In terms of their primary functional symptom, reflecting the degree of severity in our patient group, the majority of patients (n=31) had mixed symptoms (generally a combination of motor and sensory symptoms with non-epileptic seizures, plus cognitive symptoms in some cases) such that it was...

Abstract Background Functional neurological disorder (FND) is a heterogeneous condition; severe forms can be disabling. Multidisciplinary treatment and rehabilitation are recommended for severe FND, but there remains a lack of evidence for its efficacy and lack of understanding of the...

"Hypermobility Disorder/hypermobile Ehlers Danlos Syndrome (HD/hEDS) is an emerging condition for which there are increasing referrals for PN.20 DGBIs, especially functional dyspepsia and irritable bowel syndrome are strongly associated with HD/hEDS.21, 22 There is a large overlap with...

Full title: Avoiding the use of long-term parenteral support in patients without intestinal failure: A position paper from the European Society of Clinical Nutrition & Metabolism, the European Society of Neurogastroenterology and Motility and the Rome Foundation for Disorders of Gut–Brain...

Xenotropic murine leukemia virus (MLV)-related virus (XMRV) was first described in 2006 in some human prostate cancers. But it drew little attention until 2009, when it was also found, as infectious virus and as MLV-related DNA, in samples from people suffering from myalgic...

Published papers thread for w/c 1st July. Facebook: https://www.facebook.com/sci4me/posts/pfbid02EHs3ypt5Uasu8NuGt1Rm32Qsy8weKGakHX1iWLiVgLQtPUxbzQVovjbPDqU59jFul Mastodon: https://med-mastodon.com/@s4me/112750035832924029

News in Brief posts for w/c 1st July. Facebook: https://www.facebook.com/sci4me/posts/pfbid0ZUiUEEXgzgq6aCTtDWbktiStwQGkrTbcQDbh3xd1cg3eHAxvtjRHBnwyjkugkredl Mastodon: https://med-mastodon.com/@s4me/112744759099500066

"We acknowledge that fatigue may have arisen from different pathophysiological processes such as fatigue as a co-morbidity to an inflammatory condition, fibromyalgia, chronic fatigue syndrome and post-viral syndrome. We do not have further information on the nature of the fatigue and any related...

Abstract Background Fatigue is commonly reported in population surveys and has been identified in patients with health conditions as a key co-morbidity which makes remaining in work challenging. Such patients, however, rarely have access to programmes to help them manage their fatigue. Aims To...

Abstract OBJECTIVES: The pathogenesis of fibromyalgia (FM), characterised by chronic widespread pain and fatigue, remains notoriously elusive, hampering attempts to develop disease modifying treatments. Mitochondria are the headquarters of cellular energy metabolism, and their malfunction has...

Abstract Fatigue is a common and debilitating symptom in multiple sclerosis (MS). However, after over 100 years of inquiry its definition, measurement and understanding remains elusive. This paper describes the challenges clinicians and researchers face when assessing and treating MS patients...

Darren Jones is the MP for Bristol North West, in case anybody who reads this is in his constituency.

I don't know if it would be the best strategy, but I would imagine that perhaps sending something soon, congratulating them on being elected and highlighting the issues that are important to you would be a good start. At this stage we don't know whether we will see the APPG reconstituted, but...