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  1. Andy

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Previous APPG reported membership and their status following the General Election results. Carol Monaghan - Lost her seat, no longer an MP Baroness Scott of Needham Market - Member of the House of Lords, unaffected. Baroness Finlay of Llandaff - Member of the House of Lords, unaffected. Stephen...
  2. Andy

    Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+

    Trial By Error: New Paper Seeks to Reframe Poor Findings in CODES Trial of CBT for Non-Epileptic Seizures https://virology.ws/2024/07/05/trial-by-error-new-paper-seeks-to-reframe-poor-findings-in-codes-trial-of-cbt-for-non-epileptic-seizures/
  3. Andy

    Extracellular matrix remodelling pathway in peripheral blood mononuclear cells from severe COVID-19 patients: an explorative study 2024 Murphy et al

    There is a reciprocal relationship between extracellular matrix (ECM) remodelling and inflammation that could be operating in the progression of severe COVID-19. To explore the immune-driven ECM remodelling in COVID-19, we in this explorative study analysed these interactions in hospitalised...
  4. Andy

    Long‐Term POTS Outcomes Survey: Diagnosis, Therapy, and Clinical Outcomes 2024 Boris et al

    Abstract Background Limited data exist on long‐term outcomes in individuals with postural orthostatic tachycardia syndrome (POTS). We designed an electronic questionnaire assessing various aspects of outcomes among patients diagnosed and treated in a single‐center pediatric POTS clinical...
  5. Andy

    Review Functional neurological disorder, physical activity and exercise: What we know and what we can learn from comorbid disorders 2024 Boylan et al

    "Physical activity in chronic fatigue syndrome Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is an incompletely understood illness manifested by post-exertional fatigue, cognitive issues, sleep disturbances, and/or chronic pain. According to the Centers for...
  6. Andy

    Review Functional neurological disorder, physical activity and exercise: What we know and what we can learn from comorbid disorders 2024 Boylan et al

    "The recent controversies in chronic fatigue syndrome literature (discussed below) warrants investigation into any potential harm of physical activity and exercise in FBM. The most reported exercise-related adverse event is muscle pain, which as discussed is likely amplified given the prevalence...
  7. Andy

    Review Functional neurological disorder, physical activity and exercise: What we know and what we can learn from comorbid disorders 2024 Boylan et al

    Full author list: Boylan, Dworetzky, Baslet, Polich, O’Neal, Reinsberger Highlights Physical activity has not been studied in functional neurological disorder (FND). Exercise has been used to successfully treat comorbid disorders of FND. The autonomic nervous system (ANS) may mediate...
  8. Andy

    The time course of irisin release after an acute exercise: relevant implications for health and future experimental designs 2024 Tommasini et al

    This study aimed to analyze the acute impact of exercise on serum irisin levels in 22 young (YA, 24.6 ± 3.5 yrs) and in 12 middle-aged male adults (MA, 54.6 ± 5.7 yrs) 15 min and 24 h after an incremental cycling exercise test to exhaustion. ELISA assay was used for serum irisin detection...
  9. Andy

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    Trial By Error: Professor Edwards’ Take on Nutrition and Severe ME Cases https://virology.ws/2024/07/01/trial-by-error-professor-edwards-take-on-nutrition-and-severe-me-cases/
  10. Andy

    Family healthcare patterns as a proxy for transgenerational transmission of functional somatic symptoms in early childhood... 2024 Hogendoorn et al

    Full title: Family healthcare patterns as a proxy for transgenerational transmission of functional somatic symptoms in early childhood – A longitudinal cohort study All authors: Hogendoorn, Münker, Rimvall, Frostholm, Carlsen, Jeppesen, Rosmalen and Rask Abstract Objective Functional somatic...
  11. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 24th June. Facebook: https://www.facebook.com/sci4me/posts/pfbid0dDiJP454wzDYoe9T8crVSBJbejpxfJGU5pHEbmtCbhzC9A9gAwAPmmDpbYAVms3Ql Mastodon: https://med-mastodon.com/@s4me/112710400555484677
  12. Andy

    Will psychology ever 'join hands' with disability studies? Opportunities and challenges in working towards structurally competent... 2024 Hunt

    Thread here, Biopsychosocial Model Or Bio-Political Ideology? Medically unexplained symptoms, welfare reform and the implications for Long-COVID, 2022, Hunt Thread here, Healthcare Hubris - blogs on the biopsychosocial model by Joanne Hunt We have a number of other threads on publications from...
  13. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 24th June. Facebook: https://www.facebook.com/sci4me/posts/pfbid0NiFM12ZNBPMFk9UxgpdfTW3vLWMSkRnK5gfbAEndaPe6kSf9ZvCBipJniZma61Sal Mastodon: https://med-mastodon.com/@s4me/112704663902985558
  14. Andy

    Multiple physical symptoms & coping strategies over the last decade – Knowledge from 2 Danish population-based cross-sectional studies.. 2024 Raasthøj

    Full title: Multiple physical symptoms and coping strategies over the last decade – Knowledge from two Danish population-based cross-sectional studies in 2012 and 2022 Highlights The frequency of multiple physical symptoms was higher in 2022 compared to 2012. Coping scores in 2022 were...
  15. Andy

    UK: MRC [Medical Research Council] blog: Accelerating research in severe mental illness

    Posting as it demonstrates what the UK funders can do if they want to. "Five new research hubs form the basis of the UKRI mental health research platform, which aims to tackle key challenges in severe mental illness. Having a severe mental illness (SMI) can significantly impact many aspects of...
  16. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Now at 11,177 signatures. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  17. Andy

    Differences in Heart Rate Variability in the Frequency Domain between Different Groups of Patients 2024 Garbilis and Mednieks

    Abstract Background and Objectives: Heart rate variability (HRV) is defined as a physiological variation in duration between sinus beats. The aim of this study was to research and analyze the HRV between various groups of patients. Materials and Methods: A retrospective study was conducted in...
  18. Andy

    Lacticaseibacillus rhamnosus Strains for Alleviation of Irritable Bowel Disease and Chronic Fatigue Syndrome 2024 Zhang et al

    [In sleep deprived and stressed mice] Abstract Lacticaseibacillus rhamnosus is applied as a probiotic to alleviate various metabolic, gastrointestinal, and psychological symptoms and diseases, and its probiotic effectiveness is strain-specific. In this study, we obtained 21 strains of Ls...
  19. Andy

    A Syndrome in Search of a Virus - ME/CFS, Disease Paradigms, and the Social Function of Pathogens, Emily Lim Rogers, 2024

    Same author, Recursive Debility: Symptoms, Patient Activism, and the Incomplete Medicalization of ME/CFS, 2022, Lim Rogers
  20. Andy

    Will psychology ever 'join hands' with disability studies? Opportunities and challenges in working towards structurally competent... 2024 Hunt

    Full title: Will psychology ever 'join hands' with disability studies? Opportunities and challenges in working towards structurally competent and disability-affirmative psychotherapy for energy limiting conditions. Abstract Despite sustained efforts among critically informed scholars to...
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