Probably the whole of the results section could be quoted. It does summarise a lot of the difficulties people with the illness have so it itself is a bit depressing
I think one of the many benefits of more biomedical research is that it gives people hope that there might be improvements. It's one of the things that helps me to keep going and to not consider suicide.
I remember hearing in the last year or two that in another service, with Amolak Bansal, he was only seeing a tiny amount of patients (he just reviewed the notes on the others). This wasn't his choice.
The percentage seeing the doctor is going down.
From the remember September 2016 newsletter
So only 18% of people referred to the Sussex ME/CFS service saw a doctor
One would think with all those people being rediagnosed, the number shouldn't be going down much, if at all.
The English "CFS/ME" services mainly focus on offering CBT/Graded Activity Therapy/Graded Exercise Therapy. Other nonpharmacological approaches are sometimes offered.
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