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That reasonable adjustment form is very interesting @Haveyoutriedyoga

It will be ten months since the last “update” in the next couple of days……………………………

I don’t really bother taking my temperature as even when I feel feverish if I do take it it isn’t above normal

That appears to be what LC Advocacy’s letter is aimed at doing.

It just seems so antiquated to do this through massive overwhelming documents surely there are people with the skills to use an online form/questionnaire format where you work through questions and your responses are used to produce the output report tailored to you rather than 10 pages of...

They were asking specifically about maternity and gynaecology services although you have to scroll down past all the photos and ads to see that.

https://occupyme.net/2013/06/21/meeting-mets/

Zero information on their about us link https://neurolaunch.com/about/

Discussion thread on LIFT trial https://www.s4me.info/threads/the-lift-trial-omf-pyridostigmine-mestinon-and-low-dose-naltrexone-ldn.36342/

I set my own approach to tapering off Fluoxetine the GP seemed to think a few weeks 3 I think she said. Because I’d heard other people who had problems I decided to go much slower as I didn’t want to risk it. I was taking 1 20mg a day, I started with one tablet free day a week for a month then...

So it is an advertorial not an article

It’s an audio summary

I imagine it would be overwhelming to get loads of social media posts. Personally I am no longer on Xitter as I dislike the environment which has many similarities to being in a crowded stadium. Not conducive to considered discussion.

I would say that she’s perfectly entitled to write such a book

Right but that’s down to the psychiatrist putting their own spin. Nothing to do with the writer.

Many times we’ve seen articles about ME/CFS where for example representatives from the charities were inaccurately quoted or only part of what they were interviewed about was included due to the writing and editing process. I agree with @rvallee take this is nothing like Garner.

If they read the tweet you posted above that mentioned pacing and B12 injections and that she’s not recovered but improved, no they won’t

I don’t think it’s ideal advocacy, if there’s an overall increase in coverage there will inevitably be stuff like this. If it takes a few “positive spin” articles like this in order for serious advocacy stories to continue to be covered. That’s miles better than where we were with the handful...

I think we can all recognise from previous experience that the headline in particular and the gloss of the article are unlikely to be within the control of the person with ME/CFS whose story is covered.

I couldn’t see any reference to nutrition in the CDC page. Other than that It shows something succinct can be produced though.