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Sad they are so distressed but agree it isn’t appropriate.

Yes irrespective of the procedural palaver the focus should be the substantive point of the continued live status of the 2019 Cochrane review given its incompatible with NICE 2021.

Another layer of comms ineptitude by Cochrane. Ironically it’s thanks to BACME for letting the cat out of the bag and making us as informed as we have been for 2 years :whistle:

Thanks to ME Advocates Ireland for signing the letter and sharing the petition

Luckily for me I had advice from PWME to go very very slowly stopping fluoxetine- took 6 months without effect. the GP had suggested 3 weeks

I tried mefenamic before I was given tranexamic.

Thanks to the U.K. ME Association for signing the letter and sharing on social media.

ME Advocates Ireland added to the list

Information about Health Affairs https://www.healthaffairs.org/about

Yeah it wasn’t til I was in my early 40s that I got prescribed, the benefits were immediate. Then I found out a couple of colleagues on my team were taking them and I couldn’t believe they weren’t generally known about among women, in magazine articles etc.

There are medications for heavy bleeding. Tranexamic acid tablets were effective in my experience.

That’s not a study it’s customer feedback

I don’t see oncologists as bystanders. They are directly affected as this MUS and gatekeeping approach is affecting their ability to do their job effectively.

Possibly another way of saying Munchausen by proxy

About time this was highlighted

Yeah so the spa music and eye mask don’t make you relax a bit it absolutely definitely the stickers that are a completely genius new invention. Tale worthy of Hans Christian Andersen

hear hear. I’ve now had a chance to look at the pictures. The woman in the picture that appears to have offended some is a similar build to me. I think the images are intended to be easy to understand for the intended audience. The UK population includes people of all shapes and sizes so...

Spot on :emoji_dart:

Great response almost 1500 people signed today

Chris’ room looks like it is one of those old buildings with pretty high ceilings made me think maybe an acoustic issue? I had to turn the sound up a bit too and then could hear ok good conversation - 2 top blokes :thumbup: