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I think it would be equally interesting and useful to hold groups of people who don’t use these approaches to find out why not and how they are affected by ME symptoms.

None of the movement is necessary or desirable, using a picture as background makes some of the text hard to read. They serve people who are likely to have cognitive difficulties. The format should be as clean and uncluttered as possible.

This report about energy impairment may be interesting to you @Chesley https://www.s4me.info/threads/centre-for-welfare-reform-report-energy-impairment-and-disability.14887/

Agree with others overall impression that this is a positive step. In the same way the NiCE guidelines were a positive step. Just like the guidelines this isn’t a magic wand but does give a basis to get better outcomes in how NHS organisations and staff deal with pwme. Hopefully some...

As a carer??

The sound of it is something quite atrocious the hype that is

Spend the time energy and money on getting research done and on individual advocacy support for people with severe/very severe ME.

Group ME Moment :whistle:

Definitely - its hitting the ball over the boundary a maximum score for one hit here’s England captain hitting 3 consecutive 6s earlier this summer https://www.skysports.com/watch/video/sports/cricket/12913428/ben-stokes-smashes-three-consecutive-sixes-to-reach-century-at-lords

In cricket terminology @dave30th hits it for six :emoji_cricket::)

I reckon it’s only going to be of interest to see if there’s a difference between results when in/ out of PEM for each of us using the same device. Comparing against others probably pointless.

Yeah and gradual onset pwME more than likely already on SSRIs before finally getting diagnosed. And yet it doesn’t prevent the worsening.

Treatment could be used in the sense of what to do for pwME, how you as a medic should deal with someone who meets ME criteria - what C Shepherd calls management

Response time av 589. Not surprisingly as PEM today following dentist appointment yesterday and I didn’t go to sleep til 9 am I got the same message about suboptimal alertness. eta I will try to remember to give it a go on a non PEM day

Dunno sorry - just what I reckon they should do

NICE should publish a response on their own website

I will share @Grigor’s amazing video on my Facebook on 8/8

:wtf:

obviously an expert such as a “celebrity psychologist” knows more about ordinary young adults lives than they do themselves

So it’s been exhumed :wtf: