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Anything about current clinics/community based services only picks up a minority of the picture. The ICBs who do nothing should be engaged to ask how they consider the needs of people with ME/cFS are currently being addressed.

:D Indeed the acronym is unlikely to generate credibility among anglophones

Yes. I didn’t vote https://www.s4me.info/threads/was-there-a-gap-between-trigger-and-onset-of-your-me-cfs.40505/page-2#post-557531 but I think comments about how difficult/impossible for some are still relevant

True Peter. I had Gastroenteritis and then Chicken pox within a month 15 years before ME/CFS symptoms started. It might have contributed but who knows.

The petition has now reached 12,001 signatures :thumbup:

If I got ME/CFS from a virus it was a normal level cold/flu/laryngitis or gastro. I have no idea. From early 40s my health gradually got worse with regular episodes of such illnesses but also ok spells. Then at some point in early 50s I was either poorly enough to be off work or felt like I was...

SSRIs are appropriate based on what evidence?

tradition being cosy for BACME of course pretty uncosy for us

Kassenarztliche vereiningung = health insurers

Did they not have any patient input into the study design?

Functional constipation https://en.wikipedia.org/wiki/Functional_constipation

CPCS prof society = BACME wannabe for LC

And how many got an attack of hiccups from necking the fizzy water

When I moved 5 years ago I went to a local furniture manufacturer’s factory shop to buy a sofa. I insisted on lying down to make sure it was long enough to stretch out

No nobody whatsoever even imagined that viruses cause ongoing illness - completely new phenomenon :whistle:

Yay fizzy water makes you feel better :whistle:

Madan et al MECFS guidelines for occupational health 2006 https://www.s4me.info/threads/occupational-aspects-of-the-management-of-chronic-fatigue-syndrome-a-national-guideline-2006.2604/

From 2021 on long covid https://www.s4me.info/threads/supporting-patients-with-long-covid-return-to-work-2021-madan-briggs-and-chew-graham.23059/

I wondered what an online screener was it doesn’t give any indication what the severity levels represent

MEA already have an area on their website for clinicians including links to the nice guidelines, how to obtain a purple book and a link to the existing e learning module.