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Shopping Bag Award for most ridiculous research

https://me-pedia.org/wiki/Chrysalis_Effect See ME pedia entry which mentions ASA

The link for PAG application form now says they have had enough responses and they have closed the process so it is positive there has been a good response but they have closed it two weeks early. I hope there aren’t people spending precious energy working on applications who don’t know the...

Unfortunately I don’t think MPs and their parliamentary assistants seem to put enough thought into framing questions to get specific responses or follow up when they get generic replies. Some are content to top sheet hoping whatever response they get from a department is enough to demonstrate...

Follow up question required to ask for timeframe ie will it be before the recess, before the end of the year…..

Yes, short and to the point.

Similarly I’ve got a meaco air circulator fan which isn’t silent but is barely audible and is very effective. I also use physio gel packs that I freeze and wrap in a scarf to use against my core or back of head/neck. Usually at night to help sleep under normal warm summer conditions. but...

Sick leave is a fuzzy area if you’re on a phased return you’re not working your full time hours but are partially off sick, after 3 months could still be trying to return to full time. Or still being in employment unless it means return to previous role/hours could mean people have formally...

This is such a good idea, hopefully there will be some good learning that can be passed on to researchers. You mentioned gaming not needed much thinking but doesn’t the reaction that leads to pressing the buttons involve a fair bit of cognitive energy. Maintaining concentration and spatial...

https://www.decodeme.org.uk/faqs/will-i-receive-my-dna-results/?seq_no=2

Diagnosed with depression, anxiety etc etc I quote from the GP I first discussed a CFS diagnosis when I first discovered this possibility. “ We don’t like to give that diagnosis it is better to treat the symptoms.”

. Bit pompous quoting myself but I could see this coming. IIME could do something really radical with their (PWMEs)money by bringing together everyone in the U.K. involved in ME biomedical research.

The UK edition has this by D Strain. https://www.medscape.co.uk/viewarticle/key-learning-points-revised-nice-guidance-me-cfs-2022a1001jdq Maybe someone based in USA could draw their attention to the issues on medscape.com content

Seems likely to be sloppy web management leaving orphan content nothing links to that should have been removed when the link was removed.

Yes no difference between this and Lightning Process in terms of the money making multi level marketing approach of selling “practitioner training”. Should be specifically excluded in the NICE guidelines on the same basis as LP as NOT a treatment for ME.

Probably needs ME Association or the ME charities group [??] to take this up with NHS organisations.

Well it is nearly 10 years old. Bit shoddy website management to not have had it reviewed and updated.

Well done to those who made the complaint :thumbup:

D&G?