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Really interesting @Karen Kirke i get croaky voice too and definitely find myself tensing muscles when pain is worse so I will put your links on my to do list. Thanks

Were these participants self reporting as having a psychosomatic condition? Were they aware or unaware of the researchers definition of Medically Unexplained

Layla Moran was chair of the LC APPG I believe

Great job @ME/CFS Skeptic thanks for spotlighting this issue

Good to see ME Assn recognising these researchers pity they didn’t give them £90k to test FUNCAP on uk people with ME/cFS so it could be promoted for use in the NHS.

Obviously for people who haven’t used Teams or similar then there would be a need for people who could give support, directing to tutorials or whatever is available to familiarise.

Yes exactly that re collaboration tools@hotblack

Is there a link to a web page for this information?

With collaboration tools like teams it should be possible to do groups of people to discuss topics, comment on documents. It’s what they use at my old employer to work on projects.

Got this croaky throat again today at the end of a call after writing my earlier post- typical

On the Germany thread I think, it has subtitles

Presumably to be diagnosed FND there was involvement from Neurology specialists who will have written some statement about him.

In all seriousness As it is German research team I really hope someone is going to flag it up to the late night comedian guy

That’s terrible @Kitty, not surprising unfortunately

Agree with @Peter Trewhitt and @Blueskytoo im impressed by AFME response. Well done @Trish in particular for such thorough drafting. It shows what organisations can do in response to well thought through feedback when they take feedback sufficiently seriously.

Yes Croaky throat when I’ve done too much. When I was still trying to keep working on phone calls I would say if I start croaking it is a sign I need to stop. Not so frequent now but I have some calls that last about an hour eg my counselling session and if I’m on worse form I will be croaking...

I assume the British Psychological Society predates the ‘biopsychosocial model’

For anyone who isn’t aware Madan is an author of the 2006 guidelines on occupational health for CFS/ME through the NHS occupational health network Which as far as I can tell has not been superceded to reflect NICE 206 https://www.nhshealthatwork.co.uk/images/library/files/Clinical...

Possibly would have been better to be less specific then and get something out on a video or blog instead it seems like an odd event to be releasing any details of something that will inevitably raising hopes. But the hope will likely not be relevant for many/most.

I didn’t see any mention of the severity of the people involved. It does cover some of the obvious points though and appears to have had some patient involvement including in the topic guide for the interviews and how to take account of people with ME/FM needs. CFS/ME old hat terminology...