Search results

New: New NIH ME/CFS November 2023 Newsletter (3 pages) https://1drv.ms/b/s!AoHfldspRkWU09RdzVX8df83cWPsiA?e=K0eVJk

I am not sure whether the full paper is available publicly at the moment but perhaps this might be of interest to somebody https://www.wellesley.edu/lts Independent Study Award Jessica Maciuch ’22 has won an Independent Study Award for her PHIL 350 paper, “The Epistemic Injustice of the...

Continues at: https://oicanadian.com/study-identifies-predictors-of-fibromyalgia-and-chronic-fatigue-in-ibs-patients/amp/

https://erj.ersjournals.com/content/62/suppl_67/PA4639 Exercise capacity in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) treated with long-term pyridostigmine Johanna Squires, Sarra Al-Zayer, David Systrom European Respiratory Journal 2023 62: PA4639; DOI...

Press release: AusME Registry and Biobank expands research into ME/CFS to include #LongCOVID (October 12, 2023) https://www.emerge.org.au/news/pres/

Welcome to the 100th edition of Emerge Australia’s Research Digest! To commemorate the milestone of our 100th issue, we’re shining a light on Emerge Australia’s own contribution to ME/CFS (and now Long COVID) research, with the launch of AusME, the new Australian ME/CFS and Long COVID Registry...

ME Research UK is delighted to announce that we have awarded funding to Dr Zack Shan at the University of the Sunshine Coast for a new study using MRI to assess brain neuroinflammation and the lymphatic system in ME/CFS. Dr Shan and his colleagues are conducting the world’s first controlled...

Summary from ME Research UK: “Could skin temperature be linked to symptoms of autonomic dysfunction in ME/CFS?” https://www.meresearch.org.uk/could-skin-temperature-be-linked-to-symptoms-of-autonomic-dysfunction-in-me-cfs/

ME Research UK – October 2023 e-newsletter https://www.meresearch.org.uk/me-research-uk-october-2023-e-newsletter/

Same applies whether the money is public and private and the converse is also true: people leave fields when there is a lack of funds

I've set up a thread on this here: https://www.s4me.info/threads/ma-usa-%E2%80%9Cbrain-scan-study-pet-mr-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs.35887/

Michael VanElzakker posted this on Oct 22, 2023 after a similar Covid study came out: "I've been recruiting for this same study in ME patients since before the pandemic, but people are not volunteering."

Merged thread Study recruiting flyer with the headline “Brain Scan Study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Help us understand if ME/CFS is related to inflammation in the brain. The flyer explains that this study is located at the MAssachusetts General Hospital’s...

Annoying. Hope it doesn’t happen here. Many years ago they got rid of the 10mg dosage so only available in 25mg (and maybe 50mg?).

Discussion of costs:

I know some people don’t like this and similar drugs but I’m happy I was offered it and believe it has helped me in a few different ways with my severe ME symptom complex: Get 8.5-9 hours of a sleep a night (before trying it I was getting 5-6 hours a night; tried an SSRI and only got 4 hours a...

Figure 3 Key secondary outcome of SGA of relief of IBS symptoms at 6 months SGA=subjective global assessment. IBS=irritable bowel syndrome. OR=odds ratio. HADS=Hospital Anxiety and Depression Scale. *All ORs were estimated using logistic regression adjusted for recruiting hub, IBS subtype, and...

On a quick skim, this seems to be based on the results at 6 months based on a pre-specified exploratory analysis: Results at 12 months look a bit different: