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  1. Dolphin

    ME/CFS Medical Education Campaign UK - UK website and blog by Katie Johnstone

    "Recommended ME/CFS resources for medical educators" from ME/CFS Medical Education Campaign UK https://mecfsmeded.files.wordpress.com/2023/04/mecfs-learning-resources.pdf A collection of papers, articles & audiovisual material
  2. Dolphin

    ME/CFS Medical Education Campaign UK - UK website and blog by Katie Johnstone

    Our guide to developing training on ME/CFS for undergrad medical students has been updated! https://mecfs-med-ed.org/medical-educators/
  3. Dolphin

    USA: News from the Bateman Horne Center

    Oops, thanks. I have now edited that in. :thumbup:
  4. Dolphin

    USA: News from the Bateman Horne Center

    Lunch & Learn – Virtual Event July 20 @ 11:30 am - 1:30 pm MDT Free Registration page: https://batemanhornecenter.org/event/lunch-learn-virtual-event-46/ 1:30 PM ET/6:30 PM in Great Britain & Ireland Find the time in your time zone here...
  5. Dolphin

    USA: News from #MEAction

    #MEACTION GEORGIA SUPPORT CALL July 20 https://www.meaction.net/event/meaction-georgia/2023-07-20/ People from around the world are welcome 1:00 pm - 2:00 pm EDT/6 PM in Great Britain & Ireland Find the time in your time zone here...
  6. Dolphin

    USA: News from the Bateman Horne Center

    Tuesday, July 18 free-professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-51/ 3 PM ET/8 PM in Great Britain & Ireland Find the time in your time zone here...
  7. Dolphin

    Biomarkers for ME/CFS - discussion thread on the next steps for testing biomarkers, and why we need them

    Well in this case it relates to the level of bias and how important it is. In some scenarios, not having a truly socio-economically balanced cohort could mean there was a large level of distrust about the findings. However I'm not sure where possible biomarkers and the like were being...
  8. Dolphin

    Biomarkers for ME/CFS - discussion thread on the next steps for testing biomarkers, and why we need them

    As I understand it, the proposal was to get research done on the cheap by using existing data. Future studies could use a different methodology.
  9. Dolphin

    Biomarkers for ME/CFS - discussion thread on the next steps for testing biomarkers, and why we need them

    From listening to the accents of callers to the helpline for the association I help run over the last 25 years, I can tell that people from lower socio economic groups/more deprived backgrounds are less likely to call. Similar things can be seen from their addresses from people who enquired. My...
  10. Dolphin

    Biomarkers for ME/CFS - discussion thread on the next steps for testing biomarkers, and why we need them

    The perfect can be the enemy of the good. My guess is many ME/CFS studies do not have a truly representative sample of the population. Certainly I imagine that's the case in many US ME/CFS studies. I think publishing data on the results from tests that had been paid for (esp. if you had other...
  11. Dolphin

    USA: News from the Bateman Horne Center

    Bateman Horne Center Tuesday, July 11 online support group Topic: Helpful Technology https://batemanhornecenter.org/event/online-support-group-50/ 3 PM ET/8 PM in Great Britain & Ireland Find the time in your time zone here...
  12. Dolphin

    United Kingdom: ME Research UK (MERUK) News

    ME Research UK e-newsletter - June 2023 (29 June 2023) https://www.meresearch.org.uk/e-newsletter This is the correct link for ME Research UK e-newsletter - June 2023 (29 June 2023) https://www.meresearch.org.uk/e-newsletter-june-2023/
  13. Dolphin

    First major survey of doctors with Long Covid reveals debilitating impact on health, life and work, 2023, BMA media team

    Long covid: nearly half of doctors affected can no longer work full time, finds survey https://www.bmj.com/content/382/bmj.p1529
  14. Dolphin

    Biomarkers for ME/CFS - discussion thread on the next steps for testing biomarkers, and why we need them

    What different characteristics would people with ME/CFS who had paid for a test have over those who did not? I could understand that possibly being an issue with a large population study but most ME/CFS studies use convenience samples and it's unclear to me what the different characteristics...
  15. Dolphin

    Well-known, famous people with Covid-19 and Long Covid

    EXCLUSIVE: Former tennis starlet Tanysha Dissanayake on the heartache of being forced to retire aged 21 due to long Covid as the Brit admits she is too 'jealous' to watch Wimbledon this year Tanysha Dissanayake had seemed set to be one of the stars of British tennis Dissanayake shared a locker...
  16. Dolphin

    USA: News from #MEAction

    Saturday, July 15 caregiver support call (for caregivers of people with me (mylagic encephalomeylitis), long covid and associated conditions) https://www.meaction.net/event/me-caregiver-support-call/2023-07-15/ 3:30 PM EDT/8:30 PM in Great Britain & Ireland Find the time in your time zone...
  17. Dolphin

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    As you know, the 6-minute walking distances in the PACE Trial in the four trial arms all “increased” but still remained low.
  18. Dolphin

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Thanks very much to those who wrote. It was great to get this out of them: It's a pity they didn't give the raw numbers but still useful.
  19. Dolphin

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    I found the last item via this short video which doesn’t go into much detail itself
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