"Recommended ME/CFS resources for medical educators" from ME/CFS Medical Education Campaign UK
https://mecfsmeded.files.wordpress.com/2023/04/mecfs-learning-resources.pdf
A collection of papers, articles & audiovisual material
Lunch & Learn – Virtual Event
July 20 @ 11:30 am - 1:30 pm MDT Free
Registration page: https://batemanhornecenter.org/event/lunch-learn-virtual-event-46/
1:30 PM ET/6:30 PM in Great Britain & Ireland
Find the time in your time zone here...
#MEACTION GEORGIA SUPPORT CALL July 20
https://www.meaction.net/event/meaction-georgia/2023-07-20/
People from around the world are welcome
1:00 pm - 2:00 pm EDT/6 PM in Great Britain & Ireland
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Tuesday, July 18 free-professionally-facilitated online support group
https://batemanhornecenter.org/event/online-support-group-51/
3 PM ET/8 PM in Great Britain & Ireland
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Well in this case it relates to the level of bias and how important it is.
In some scenarios, not having a truly socio-economically balanced cohort could mean there was a large level of distrust about the findings. However I'm not sure where possible biomarkers and the like were being...
From listening to the accents of callers to the helpline for the association I help run over the last 25 years, I can tell that people from lower socio economic groups/more deprived backgrounds are less likely to call. Similar things can be seen from their addresses from people who enquired.
My...
The perfect can be the enemy of the good.
My guess is many ME/CFS studies do not have a truly representative sample of the population.
Certainly I imagine that's the case in many US ME/CFS studies.
I think publishing data on the results from tests that had been paid for (esp. if you had other...
Bateman Horne Center Tuesday, July 11 online support group
Topic: Helpful Technology
https://batemanhornecenter.org/event/online-support-group-50/
3 PM ET/8 PM in Great Britain & Ireland
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ME Research UK e-newsletter - June 2023 (29 June 2023)
https://www.meresearch.org.uk/e-newsletter
This is the correct link for ME Research UK e-newsletter - June 2023
(29 June 2023)
https://www.meresearch.org.uk/e-newsletter-june-2023/
What different characteristics would people with ME/CFS who had paid for a test have over those who did not? I could understand that possibly being an issue with a large population study but most ME/CFS studies use convenience samples and it's unclear to me what the different characteristics...
EXCLUSIVE: Former tennis starlet Tanysha Dissanayake on the heartache of being forced to retire aged 21 due to long Covid as the Brit admits she is too 'jealous' to watch Wimbledon this year
Tanysha Dissanayake had seemed set to be one of the stars of British tennis
Dissanayake shared a locker...
Saturday, July 15 caregiver support call (for caregivers of people with me (mylagic encephalomeylitis), long covid and associated conditions)
https://www.meaction.net/event/me-caregiver-support-call/2023-07-15/
3:30 PM EDT/8:30 PM in Great Britain & Ireland
Find the time in your time zone...
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