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2-minute video piece plus text that is somewhat similar to a transcript "Dunedin researchers reveal strong link between #longCOVID & #chronicfatiguesyndrome"...

2-minute video piece plus text that is somewhat similar to a transcript "Dunedin researchers reveal strong link between #longCOVID & #chronicfatiguesyndrome"...

Recording of NIH #MECFS Research Roadmap: Lesser Studied Pathologies Webinar is now available Speakers included Vicky Whittemore; Beth Pollack; Ilene Ruhoy; Petra Klinge; Anne Maitland; Julie Rehmeyer; Laura Pace; Beth Pollack; Natalie Thomas; Emelia von Saltza; Roumiana Boneva; Elizabeth Unger

I can’t see a text version on the Irish Times website so the images I saw posted elsewhere will have to do. People may remember Vincent Deary from when he worked in the KCL chronic fatigue unit with Trudie Chalder, Simon Wessely et al. Thread on an unpopular article he wrote when he was there...

https://www.tandfonline.com/doi/full/10.1080/21641846.2024.2303887 ABSTRACT Purpose Myalgic Encephalomyelitis (ME) is a chronic neurological illness also known as Chronic Fatigue Syndrome (CFS). Key symptoms are extreme fatigue, post-exertional malaise, cognitive problems and sleep...

These are reviews of the Metrodora Institute not the Metrodora Foundation. Edited to add: There is a separate thread on that here: https://www.s4me.info/threads/metrodora-clinic-news-and-discussion-salt-lake-city-area.33347/

As an aside: the Open Medicine Foundation started out as the research arm of the already-existing Open Medicine Institute (i.e. a clinical practice) before eventually splitting.

Are they connected? I haven’t researched. Press release is from Salt Lake City also so my guess is there is some connection?

One can see a bit of the full text here: https://www.sciencedirect.com/science/article/abs/pii/S0149291824000067

https://www.accesswire.com/viewarticle.aspx?id=826068 Metrodora Foundation Announces New Scientific Advisory Board Thursday, 18 January 2024 11:00 Board Will Serve as Strategic Advisors to Accelerate Research for Millions of Patients Living With Chronic, Multisystem Disorders SALT LAKE CITY...

Comment underneath which I thought was interesting. I wonder how many people with ME/CFS have been scared into “not resting too much” when more rest/less activity might be better.

https://www.cell.com/cell-reports-medicine/fulltext/S2666-3791(23)00601-8#%20 ARTICLE| VOLUME 5, ISSUE 1, 101372, JANUARY 16, 2024 The impact of bed rest on human skeletal muscle metabolism Moritz Eggelbusch Braeden T. Charlton Alessandra Bosutti Bergita Ganse Ifigenia Giakoumaki Anita E...

Extract from: Carolyn Wilshire, Tom Kindlon & Simon McGrath (2017) PACE trial claims of recovery are not justified by the data: a rejoinder to Sharpe, Chalder, Johnson, Goldsmith and White (2017), Fatigue: Biomedicine, Health & Behavior, 5:1, 62-67, DOI: 10.1080/21641846.2017.1299358 .

There was this CFS trial in 1997. The dosage of l-carnitine was 1g 3 times per day. https://pubmed.ncbi.nlm.nih.gov/9018019/ Amantadine and L-carnitine treatment of Chronic Fatigue Syndrome A V Plioplys 1, S Plioplys Affiliations PMID: 9018019 DOI: 10.1159/000119325 Abstract Carnitine is...

Last reviewed: 16 Dec 2023 Last updated: 09 Jan 2024 https://bestpractice.bmj.com/topics/en-gb/277

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The normal range calculations for fatigue and physical functioning weren’t adjusted before statistical analysis. There were called post hoc in the Lancet in 2011. So they were still post hoc in the recovery paper in 2013. The other changes to the recovery criteria weren’t changed before...