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  1. Dolphin

    Digital assistance to support integrated healthcare [in Latvia], 2023, Araja

    https://ijic.org/articles/10.5334/ijic.ICIC23633 Poster Abstracts Digital assistance to support integrated healthcare. Authors: Diana Araja Uldis Berkis Modra Murovska Abstract This abstract is devoted to digital assistance as a supportive tool of integrated healthcare. According to the World...
  2. Dolphin

    USA: News from the Bateman Horne Center

    Free, professionally-facilitated online support group Tuesday, January 9 https://batemanhornecenter.org/event/online-support-group-62/ 1PM MST/3 PM ET/8 PM Great Britain & Ireland Find the time in your time zone here...
  3. Dolphin

    Exploring the neurocognitive consequences of post-exertional malaise in myalgic encephalomyelitis, 2023, Moreau

    https://www.jns-journal.com/article/S0022-510X(23)02051-8/fulltext PV1412 / #1916| VOLUME 455, SUPPLEMENT , 122590, DECEMBER 2023 Exploring the neurocognitive consequences of post-exertional malaise in myalgic encephalomyelitis Corinne Leveau Iurie Caraus Anita Franco Alain Moreau...
  4. Dolphin

    Thesis Transdiagnostic symptom clusters among idiopathic pain and fatigue disorders, 2023, Jones

    This looks like it's from the Younger lab. Only a small part of the thesis is available at the link unfortunately. Source: University of Alabama at Birmingham Date: November 7, 2023 URL: https://www.proquest.com/openview/5982633b59420a2cf10136ec8bd59280/1 Transdiagnostic symptom clusters among...
  5. Dolphin

    Trial Report Dysregulation of the autonomic nervous system in ME/CFS and post-COVID syndrome: insights from 48-h heart rate variability monitoring, 2023, Ziaja

    https://www.jns-journal.com/article/S0022-510X(23)00702-5/fulltext ABSTRACT| VOLUME 455, SUPPLEMENT , 121241, DECEMBER 2023 Dysregulation of the autonomic nervous system in ME/CFS and post-COVID syndrome: insights from 48-h heart rate variability monitoring Christof Peter Dr Ziaja Susanne...
  6. Dolphin

    Long COVID-19 and post-viral chronic fatigue syndrome (CFS/ME): Similarities and differences, 2023, Chaudhuri

    Unfortunately there is not much shared in what is freely available. https://www.jns-journal.com/article/S0022-510X(23)00594-4/fulltext ABSTRACT| VOLUME 455, SUPPLEMENT , 121133, DECEMBER 2023 Long COVID-19 and post-viral chronic fatigue syndrome (CFS/ME): Similarities and differences Abhijit...
  7. Dolphin

    A Girl Behind Dark Glasses - Jessica Taylor-Bearman

    In the world Beyond Closed Doors, this girl tells it like it really is! https://meassociation.org.uk/2023/12/in-the-world-beyond-closed-doors-this-girl-takes-the-biscuit/
  8. Dolphin

    Works of fiction where characters have ME/CFS

    “Toby and the Wizards of Wildhaven”: Book for children aged 9-12 with character with ME https://meassociation.org.uk/2023/12/when-sally-met-toby-expect-fireworks/
  9. Dolphin

    Well-known, famous people with ME/CFS (public thread)

    Novelist Shirley Conran made a dame in Liz Truss’s resignation honours list The 91-year-old is best known for her books including Superwoman and Lace. Published Dec 29 Last updated Dec 29 [..] Dame Shirley began writing books after she was diagnosed with myalgic encephalomyelitis (ME) in her...
  10. Dolphin

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    Merged thread Identifying and managing suicidality amongst people with ME: A Conversation with Dr Lily Chu and Dr Eleanor Stein Thread starter Bronc Start dateThursday at 4:00 PM by Bronc During November of 2023 the UK government issued a five year suicide prevention strategy. This stated...
  11. Dolphin

    Trial Report Cost-Effectiveness of Online CBT for Children with CFS/ME Compared to Online Activity Management: FITNET-NHS Trial Findings, 2023, Crawley

    I didn't read it as a 0.53 QALY gain but rather felt more likely that those were the final QALYs. ETA: I'm beginning to think that perhaps your interpretation rather than the one I was leaning towards may be more likely. Time will tell with the full paper.
  12. Dolphin

    Preprint Long-Term Effects of COVID-19 in Children and Young People: A 24-Month National Cohort Study, 2023, Pereira

    https://www.researchsquare.com/article/rs-3750111/v1 Long-Term Effects of COVID-19 in Children and Young People: A 24-Month National Cohort Study Snehal Pinto Pereira1 Terence Stephenson Manjula Nugawela Emma Dalrymple Anthony Harnden Elizabeth Whittaker Isobel Heyman Tamsin Ford2...
  13. Dolphin

    Trial Report Cost-Effectiveness of Online CBT for Children with CFS/ME Compared to Online Activity Management: FITNET-NHS Trial Findings, 2023, Crawley

    Unfortunately the interesting bit is behind a pay wall https://www.valueinhealthjournal.com/article/S1098-3015(23)03636-7/fulltext Cost-Effectiveness of Online Cognitive Behavioral Therapy for Children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) Compared to Online Activity...
  14. Dolphin

    Trial Report Assessing symptoms of long/post COVID and CFS using the DePaul symptom questionnaire-2: a validation in a German-speaking population, 2023, Jason et a

    Free fulltext: https://www.tandfonline.com/doi/full/10.1080/21641846.2023.2295419 Assessing symptoms of long/post COVID and chronic fatigue syndrome using the DePaul symptom questionnaire-2: a validation in a German-speaking population Nina Buntić Leonard A. Jason Jochen Schneider Marc...
  15. Dolphin

    Para-infectious brain injury in COVID-19 persists at follow-up despite attenuated cytokine and autoantibody responses, 2023, Michael et al

    Press release: Ongoing brain injury caused by COVID-19 may not always be detected by routine tests https://www.eurekalert.org/news-releases/1029825
  16. Dolphin

    Closed UK: DecodeME updates, was recruitment thread.

    I saw a few people on Twitter saying something similar
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