Recording now available for NIH conference: Advancing ME/CFS Research: Identifying Targets for Intervention & Learning from #LongCOVID (day 2)
https://videocast.nih.gov/watch=52738
Recap notes from our Improving the Holidays Support Group when Chronically Ill
https://batemanhornecenter.org/wp-content/uploads/2023/12/Support-Group-Recap_-Improving-the-Holidays-when-Chronically-Ill-1.pdf
From: International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME) <iacfsmeorg@gmail.com.growthzoneapp.com>
Subject: Support IACFS/ME through your donation!
2023 IACFS/ME Donation Event
Now through January 31, 2024
CLICK HERE TO DONATE!
Dear IACFS/ME...
(From 2020)
Sheffield ME and fibromyalgia group webinar
ME/CFS in children and young people - Dr Nigel Speight
Dr Nigel Speight, foremost UK expert in ME in children and young people, talking about 'ME in children and young people, an ideal approach compared with less than ideal approaches'...
ABC News (Australia):
"How Dave Clark regained a meaningful life after developing chronic fatigue syndrome"
https://www.abc.net.au/news/2023-12-08/dave-clark-on-living-with-chronic-fatigue-syndrome/103071294
2-minute video of Dave reading his poem plus a separate text piece by him
"Ask the expert: the ME/CFS Mystery. Dr Paul Hwang explains a little more about his PNAS paper 'WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome'" (December 15)...
Recording of NIH #MECFS Research Roadmap: Physiology Webinar is now available
Speakers included Michele James, Robert Naviaux, Rob Phair, Dominic Stanculescu, Rebecca Robbins, Maiken Nedergaard, Karl Tronstad, Ron Davis, Ludovic Giloteaux
Source: Charite University Date: November 30, 2023 URL: https://refubium.fu-berlin.de/handle/fub188/40276
https://refubium.fu-berlin.de/bitstream/handle/fub188/40276/Szklarski_Marvin_Diss.pdf
Characterization of subgroups in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome based on onset...
Preprint now published. See post #6
https://www.medrxiv.org/content/10.1101/2023.12.18.23299958v1
Prevalence of orthostatic intolerance in Long Covid clinic patients – A multicentre observational study
Cassie Lee1(0009-0004-9449-0932) Darren C Greenwood2, Harsha Master3, Kumaran...
Recording of NIH #MECFS Research Roadmap: Chronic Infections Webinar is now available
Speakers included David Holcomb/Michael Peluso/Anthony Komaroff/Simon Carding
From: Dr. Marc-Alexander Fluks
Subject: WHO: FAQ Chronic fatigue syndrome
World Health Organization, december 18, 2023: Chronic fatigue syndrome,
https://www.who.int/standards/classifications/frequently-asked-questions/chronic-fatigue-syndrome
CDC ME/CFS Program Update for today’s call (5 pages) has just been emailed out.
https://1drv.ms/b/s!AoHfldspRkWU0-wf6zOsSGZTnBJgtQ?e=JJd9LC
Call starts in less than an hour
Bateman Horne Center
12 Dec 2023
Long COVID & Post-Viral Syndromes ECHO
When Exercise Doesn't Help
Bateman Horne Center and the University of Utah Health ECHO teams join forces once again to provide a case-based learning series illuminating strategies for assessment and management of Long...
https://www.researchsquare.com/article/rs-3736031/v1
Association of circulating biomarkers with illness severity measures differentiates myalgic encephalomyelitis/chronic fatigue syndrome and post-COVID-19 condition: a prospective cohort study
Joan Carles Domingo1
Federica Battistini2
Begoña...
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