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"Many people with postural orthostatic tachycardia syndrome (POTS) have difficulty exercising. While poor tolerance of exercise is one of the key features of the syndrome, physical activity is an important therapy commonly recommended for people with this syndrome. POTS is a neurologic disorder...

Apparently the list of names has been taken down. "The list is down for now. We know what happened. This was a collated list of names from multiple grants, no involvement of many individuals. We will report back transparently to the community concerning our actions for this situation."

News in Brief posts for w/c 6th March Facebook: https://www.facebook.com/sci4me/posts/pfbid0vy5RM11JHTxyhCxAdhafFActXzRJ7pHzk9FrWsBfjsEsEvx9PgCyhddYXfux95GXl Mastodon: https://med-mastodon.com/@s4me/110010405479793889

Abstract (1) Background: L-tryptophan is a substrate for the synthesis of many biological compounds through the serotonin and kynurenine pathways. These compounds have a significant influence on gastrointestinal functions and mental processes. The aim of the study was to evaluate the urinary...

Abstract Pain symptoms after the acute phase of severe acute respiratory syndrome coronavirus-2 (SARS-CoV-2) are present in almost 50% of COVID-19 survivors. The presence of kinesiophobia is a risk factor which may promote and perpetuate pain. This study aimed to investigate variables...

Abstract A considerable amount of people who have been infected with SARS-CoV-2 experience ongoing symptoms, a condition termed long COVID. This study examined nuanced experiences of social stigma in people with long COVID and their associations with perceived stress, depressive symptoms...

18 months is very long, apparently. I wonder how they will term it in 10 years, or more, time. Ancient Long COVID perhaps?

Abstract According to the World Health Organization’s definition, long COVID is the persistence or development of new symptoms 3 months after the initial infection. Various conditions have been explored in studies with up to one-year follow-up but very few looked further. This prospective...

Abstract A significant proportion of patients experience a wide range of symptoms following acute coronavirus disease 2019 (COVID-19). Laboratory analyses of long COVID have demonstrated imbalances in metabolic parameters, suggesting that it is one of the many outcomes induced by long COVID...

Abstract Background Disentangling the effects of SARS-CoV-2 variants and vaccination on the occurrence of post-acute sequelae of SARS-CoV-2 (PASC) is crucial to estimate and reduce the burden of PASC. Methods We performed a cross-sectional analysis (May/June 2022) within a prospective...

Abstract Objective: To collect the available evidence about the effectiveness of pain neuroscience education (PNE) on pain, disability, and psychosocial factors in patients with chronic musculoskeletal (MSK) pain and central sensitization (CS). Methods: A systematic review was conducted...

I assume that this tweet thread is in response to concerns raised about those names then. "Greetings @LongCOVIDWebCA community. That will be my own statement. I have received and seen multiple concerns regarding the network’s members list. Please note that our webmaster was simply tasked in...

Thread on Long Covid Web here, Canada: Long Covid Web

Fizzlou pointed out a number of problematic members of this web here, The problematic names that stood out to me at first glance are Flottorp, Garner, Busse, Knoop, Rosmalen, Sharpe, and Wyller.

"Who We Are We are built from various backgrounds. We believe complex problems benefit from diversity – diverse cognitive repertoires, technical skills and cultural backgrounds. PWLE is at the heart of the Network, helping to shape our vision and mission. The term "Web" refers to the patient...

Wellbeing of Women say "From period problems and starting a family, to menopause and gynaecological cancers, we are here for women’s gynaecological and reproductive health." on their website, https://www.wellbeingofwomen.org.uk/about-us/, so presumably ME/CFS wouldn't necessarily fit with that.

"The Petitions Committee – a cross-party group of MPs who consider petitions started on petition.parliament.uk – has scheduled a debate in Parliament on two petitions calling for increased financial support for disabled people, one or both of which you may have signed: Make people on...

Abstract Patient and public involvement (PPI) in every aspect of research will add valuable insights from patients’ experiences, help to explore barriers and facilitators to their compliance/adherence to assessment and treatment methods, bring meaningful outcomes that could meet their...

Summary Background “Exercise-induced gastrointestinal syndrome” refers to disturbances of gastrointestinal integrity and function that are common features of strenuous exercise. Aim To systematically review the literature to establish the impact of acute exercise on markers of gastrointestinal...

Full title: Reliability of pathophysiological markers reflective of exercise-induced gastrointestinal syndrome (EIGS) in response to 2-h high-intensity interval exercise: A comprehensive methodological efficacy exploration The study aimed to determine the test-retest reliability of...