Search results

  1. Andy

    Relative Energy Deficiency in Sport (RED-S)

    Stumbled on this and thought it might be of interest to some. From Wikipedia, "Relative energy deficiency in sport (RED-S)[1][2] is a syndrome in which disordered eating (or low energy availability),[3] amenorrhoea/oligomenorrhoea (in women), and decreased bone mineral density (osteoporosis...
  2. Andy

    Severe difficulties with eating in ME/CFS

    The anniversary of his death has reminded me what Bob went through towards the end, which seemed to be centered around issues with eating and digesting food. See here, Bob, where he describes his experience.
  3. Andy

    Functional neurological disorder: Clinical manifestations and comorbidities; an online survey 2023 Ducroizet, Edwards et al

    If they say it often enough then they hope it will become the accepted 'truth', and I would imagine that the majority of reviewers either know no different, or agree with them.
  4. Andy

    Low-level tragus stimulation improves autoantibody-induced hyperadrenergic postural tachycardia syndrome in rabbits 2023 Guo et al

    Background Recent studies have demonstrated that antiadrenergic autoantibodies are involved in the pathophysiology of postural orthostatic tachycardia syndrome (POTS). Objective The purpose of this study was to test the hypothesis that transcutaneous low-level tragus stimulation (LLTS)...
  5. Andy

    Functional neurological disorder: Clinical manifestations and comorbidities; an online survey 2023 Ducroizet, Edwards et al

    "Alongside the core neurological symptoms of FND, associated physical symptoms such as pain and fatigue are of particular importance [[11], [12]] since such symptoms can impair quality of life and adversely affect prognosis [[11], [12], [13]]. There is also significant overlap in the symptoms...
  6. Andy

    Functional neurological disorder: Clinical manifestations and comorbidities; an online survey 2023 Ducroizet, Edwards et al

    Abstract Functional Neurological Disorder (FND) is common and is often accompanied by multiple comorbid symptoms and conditions. There have been no large-scale studies exploring the change of its clinical manifestations and comorbidities. We used an online survey to assess FND patient...
  7. Andy

    Sense of control, selective attention, cognitive inhibition, and psychosocial outcomes after Retraining and Control Therapy (ReACT)... 2023 Stager

    Full title: Sense of control, selective attention, cognitive inhibition, and psychosocial outcomes after Retraining and Control Therapy (ReACT) in pediatric functional seizures Highlights ReACT improves sense of control, cognitive inhibition, selective attention, and somatic symptoms. Sense of...
  8. Andy

    Long COVID—six months of prospective follow-up of changes in symptom profiles of non-hospitalised children and young people.. 2023 Stephenson et al

    Full title: Long COVID—six months of prospective follow-up of changes in symptom profiles of non-hospitalised children and young people after SARS-CoV-2 testing: A national matched cohort study (The CLoCk) study Authors also include Trudie Chalder. Abstract Background Little is known about...
  9. Andy

    Using Data Mining and Time Series to Investigate ME and CFS Naming Preferences 2023 Bhatia and Jason

    As far as I can see, it's a nonsense proposal which would create more confusion and stigma while solving nothing.
  10. Andy

    Patient Perspectives on the Meaning and Impact of Fatigue in Hemodialysis: A Systematic Review and Thematic Analysis of Qualitative Studies, 2019

    Full email posted here In the same thread it was highlighted that not only is Dedra Buchwald part of COFFI, which is a collection of BPS 'researchers' who focus on fatigue, she is also one of the named authors of the yet-to-be-published publication that claims to list the "Eight major errors...
  11. Andy

    Using Data Mining and Time Series to Investigate ME and CFS Naming Preferences 2023 Bhatia and Jason

    Facebook post from ME Research UK about this paper, my bolding. "ME and CFS are recorded separately by the World Health Organisation, with both being classified as diseases of the nervous system. Each has their own separate history. The USA now has a specific category for ME/CFS in the...
  12. Andy

    Using Data Mining and Time Series to Investigate ME and CFS Naming Preferences 2023 Bhatia and Jason

    Abstract There have been numerous iterations of naming convention specified for Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). As health care turns to “big data” analytics to gain insights, the Google Trends database was mined to ascertain worldwide trends of public interest...
  13. Andy

    Myelin lipid metabolism and its role in myelination and myelin maintenance, 2022, Barnes-Vélez et al

    A non-member has suggested that this article by Morelli that talks about energy production in the myelin sheath might be of interest, https://researchfeatures.com/wp-content/uploads/2022/07/Alessandro-Maria-Morelli.pdf as well as this paper, Conservation and divergence of myelin proteome and...
  14. Andy

    Myelin lipid metabolism and its role in myelination and myelin maintenance, 2022, Barnes-Vélez et al

    Other "myelin" threads. Evidence for aerobic ATP synthesis in isolated myelin vesicles, 2009, Ravera et al Myelin sheath: A new possible role in sleep mechanism, 2011, Morelli et al Myelin sheath and cyanobacterial thylakoids as concentric multilamellar structures with similar bioenergetic...
  15. Andy

    International: Science for ME social media posts

    Published papers thread from w/c 27th Feb Facebook: https://www.facebook.com/sci4me/posts/pfbid032p4UcygmoFSzFbvCED9FRGSpC3TcZdBvmXFD9oNC9V1XAKUSf2DBoyDZKYKqe6KXl Mastodon: https://med-mastodon.com/@s4me/109975673097337341
  16. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 27th Feb. Facebook: https://www.facebook.com/sci4me/posts/pfbid02z62tGUwnc96jUuAnVGmR7EiYZkUL95Kxxy9JfuNRCys9PTmdsWx5Vyzuh8TrWdwol Mastodon: https://med-mastodon.com/@s4me/109970853506777698
  17. Andy

    Diagnostic accuracy of clinical signs and investigations for functional weakness, sensory & movement disorders: A systematic review 2023 Patwal et al

    Abstract Introduction Patients with functional neurological disorders (FND) present with weakness, sensory or movement disorder without corresponding brain pathology. The current classificatory systems suggest an inclusionary approach to diagnose FND. Hence, there is a need to systematically...
  18. Andy

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    The next meeting of the All Party Parliamentary Group for ME will include More detail here, UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward
  19. Andy

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    "The ME/CFS All Party Parliamentary Group will meet on 21 March 2023. In addition to reconstituting the APPG, the AGM will include: a one year-on review of the implementation of the new NICE guideline including a presentation from Action for M.E. on the results from a Freedom of Information...
Back
Top