Stumbled on this and thought it might be of interest to some.
From Wikipedia,
"Relative energy deficiency in sport (RED-S)[1][2] is a syndrome in which disordered eating (or low energy availability),[3] amenorrhoea/oligomenorrhoea (in women), and decreased bone mineral density (osteoporosis...
The anniversary of his death has reminded me what Bob went through towards the end, which seemed to be centered around issues with eating and digesting food. See here, Bob, where he describes his experience.
If they say it often enough then they hope it will become the accepted 'truth', and I would imagine that the majority of reviewers either know no different, or agree with them.
Background
Recent studies have demonstrated that antiadrenergic autoantibodies are involved in the pathophysiology of postural orthostatic tachycardia syndrome (POTS).
Objective
The purpose of this study was to test the hypothesis that transcutaneous low-level tragus stimulation (LLTS)...
"Alongside the core neurological symptoms of FND, associated physical symptoms such as pain and fatigue are of particular importance [[11], [12]] since such symptoms can impair quality of life and adversely affect prognosis [[11], [12], [13]]. There is also significant overlap in the symptoms...
Abstract
Functional Neurological Disorder (FND) is common and is often accompanied by multiple comorbid symptoms and conditions. There have been no large-scale studies exploring the change of its clinical manifestations and comorbidities.
We used an online survey to assess FND patient...
Full title: Sense of control, selective attention, cognitive inhibition, and psychosocial outcomes after Retraining and Control Therapy (ReACT) in pediatric functional seizures
Highlights
ReACT improves sense of control, cognitive inhibition, selective attention, and somatic symptoms.
Sense of...
Full title: Long COVID—six months of prospective follow-up of changes in symptom profiles of non-hospitalised children and young people after SARS-CoV-2 testing: A national matched cohort study (The CLoCk) study
Authors also include Trudie Chalder.
Abstract
Background
Little is known about...
Full email posted here
In the same thread it was highlighted that not only is Dedra Buchwald part of COFFI, which is a collection of BPS 'researchers' who focus on fatigue, she is also one of the named authors of the yet-to-be-published publication that claims to list the "Eight major errors...
Facebook post from ME Research UK about this paper, my bolding.
"ME and CFS are recorded separately by the World Health Organisation, with both being classified as diseases of the nervous system. Each has their own separate history. The USA now has a specific category for ME/CFS in the...
Abstract
There have been numerous iterations of naming convention specified for Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). As health care turns to “big data” analytics to gain insights, the Google Trends database was mined to ascertain worldwide trends of public interest...
A non-member has suggested that this article by Morelli that talks about energy production in the myelin sheath might be of interest, https://researchfeatures.com/wp-content/uploads/2022/07/Alessandro-Maria-Morelli.pdf
as well as this paper, Conservation and divergence of myelin proteome and...
Other "myelin" threads.
Evidence for aerobic ATP synthesis in isolated myelin vesicles, 2009, Ravera et al
Myelin sheath: A new possible role in sleep mechanism, 2011, Morelli et al
Myelin sheath and cyanobacterial thylakoids as concentric multilamellar structures with similar bioenergetic...
Published papers thread from w/c 27th Feb
Facebook: https://www.facebook.com/sci4me/posts/pfbid032p4UcygmoFSzFbvCED9FRGSpC3TcZdBvmXFD9oNC9V1XAKUSf2DBoyDZKYKqe6KXl
Mastodon: https://med-mastodon.com/@s4me/109975673097337341
Abstract
Introduction
Patients with functional neurological disorders (FND) present with weakness, sensory or movement disorder without corresponding brain pathology. The current classificatory systems suggest an inclusionary approach to diagnose FND. Hence, there is a need to systematically...
The next meeting of the All Party Parliamentary Group for ME will include
More detail here, UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward
"The ME/CFS All Party Parliamentary Group will meet on 21 March 2023. In addition to reconstituting the APPG, the AGM will include:
a one year-on review of the implementation of the new NICE guideline including a presentation from Action for M.E. on the results from a Freedom of Information...
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