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  1. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 19th June Facebook: https://www.facebook.com/sci4me/posts/pfbid0JVX2ZqqKT9NUru6nJeCffAntpJreKCt28B73WTqvEzfgZNUU5RgnBDTSXd2wvuVZl Mastodon: https://med-mastodon.com/@s4me/110609439577082109
  2. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    New blog Inviting More Participants to Donate DNA DecodeME can now invite even more people to donate their DNA. This is because we will apply an additional scientific method to ensure that our genetic findings are due to ME/CFS and not to common co-occurring conditions. This new...
  3. Andy

    Letter: Disrespectful language about patients with long COVID 2023 Pelosi

    "The Lancet's careless discussion of psychosomatic conditions mirrors disrespectful language that can be encountered in medical, surgical, and even psychiatric clinics throughout the UK. The Editors could make amends by using their writing skills to try to improve doctor–patient communication...
  4. Andy

    Living With ME - Documentary by Thomas McCann

    DecodeME Twitter post highlighting the documentary.
  5. Andy

    Living With ME - Documentary by Thomas McCann

    "My name is Thomas McCann and I am a recent Graduate of the Edinburgh Napier University BA Journalism Course. This documentary was created by me and submitted as my Major Project. ME is a chronic illness which has been under researched and poorly understood for decades, and those who suffer...
  6. Andy

    Discordance between Adolescents and Parents in Functional Somatic Symptom Reports:... 2023 Hogendoorn, Rosmalen et al

    Full title: Discordance between Adolescents and Parents in Functional Somatic Symptom Reports: Sex Differences and Future Symptom Prevalence Functional somatic symptoms, i.e., physical complaints that cannot be sufficiently explained by an objectifiable biomedical abnormality, become...
  7. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 19th June Facebook: https://www.facebook.com/sci4me/posts/pfbid02YECrf5j4UWtatYYbPAnVtUu9UMZUDxfRCjoQYsXwjNWw4xFXQv1zMCVR5v5XmVTjl Mastodon: https://med-mastodon.com/@s4me/110604872089503280
  8. Andy

    Circulating miRNAs Expression in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2023 Soffritti et al

    Online version, https://www.mdpi.com/1422-0067/24/13/10582 Fukuda criteria.
  9. Andy

    Functional Neurological Disorder (FND) - articles, social media and discussion

    The Medical Review of Liege, "a tool for continuous medical training being addressed to students, general practitioners, and specialists", May-June edition is on functional disorders, https://rmlg.uliege.be/
  10. Andy

    Review The Prevalence and Nature of Eating and Swallowing Problems in Adults with Fibromyalgia: A Systematic Review 2023 Gilheaney and Chadwick

    Fibromyalgia is a complex chronic pain condition characterized by widespread pain, fatigue, cognitive dysfunction, and sleep disturbances. People with fibromyalgia can experience both autonomic and somatic disturbances, cognitive and mental health symptoms, and hypersensitivity to external...
  11. Andy

    Economic Cost of Functional Neurologic Disorders: A Systematic Review, 2023, O'Mahony, Edwards et al

    "Studies showed an excess annual cost associated with FND (range $4,964 to $86,722 2021 USD)" Only a small variation then.....
  12. Andy

    Economic Cost of Functional Neurologic Disorders: A Systematic Review, 2023, O'Mahony, Edwards et al

    Introduction Functional Neurological Disorder (FND) represents genuine involuntary neurological symptoms and signs including seizures, weakness and sensory disturbance which have characteristic clinical features, and represent a problem of voluntary control and perception despite normal basic...
  13. Andy

    Poor health-related quality of life in [POTS] in comparison with a sex- and age-matched normative population, 2023, Seeley et al

    Full title: Poor health-related quality of life in postural orthostatic tachycardia syndrome in comparison with a sex- and age-matched normative population Purpose The effect of postural orthostatic tachycardia syndrome (POTS) on health-related quality of life (HrQoL) remains poorly studied...
  14. Andy

    Outcomes of an Integrated Multidisciplinary Clinic for People with Functional Neurological Disorder 2023 Palmer et al

    13 patients in one year!! Not sure where the extra patient came from, considering only 11 agreed to participate.
  15. Andy

    Outcomes of an Integrated Multidisciplinary Clinic for People with Functional Neurological Disorder 2023 Palmer et al

    Background Functional neurological disorder (FND) is a disabling condition which has poor prognosis without treatment. This study aimed to evaluate the effectiveness of an outpatient integrated multidisciplinary intervention for the condition. Objectives This study aimed to assess the outcomes...
  16. Andy

    Review The role of psychiatry in diagnosis and treatment of paediatric chronic fatigue syndrome – a scoping literature review, 2023, Dolp et al

    Objectives Paediatric Chronic Fatigue Syndrome (pCFS) is a common condition that significantly disrupts a healthy psychosocial development. Psychiatric symptoms associated with pCFS are conceptualized as either part of its complex etiology, its consequence, or as a comorbidity. However...
  17. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 12th June Facebook: https://www.facebook.com/sci4me/posts/pfbid0fBBqm2qh2pDSX59egKeY6pX6VMAQWT4XkzRtsQy9kdy83sNKgxiFp1GjS76QLbnFl Mastodon: https://med-mastodon.com/@s4me/110570055663213355
  18. Andy

    "I thought I should always be positive with my patients – until I found out how damaging that can be", article by palliative care doctor

    "In my early years as a doctor, I thought it was my role to be positive, sometimes overly positive, with patients and their next of kin, reassuring them of a low likelihood of my worst suspicions being confirmed. Yet I started to find myself regretting what I had said, especially when a hunch...
  19. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 12th June Facebook: https://www.facebook.com/sci4me/posts/pfbid0GyvmCx94WAJzaTVgwQwcnNZb2gxtFdserFgHkWGqeVTRLXeAUQCFGTtMBSyuDwV1l Mastodon: https://med-mastodon.com/@s4me/110565037543595357
  20. Andy

    Post-viral idiopathic purpura fulminans is associated with inherited thrombophilia and anti-cardiolipin antibodies 2023 Theron et al

    Introduction: Idiopathic purpura fulminans (IPF) is a rare and severe coagulation disorder, associated with transient anti-protein S (anti-PS) antibodies in the context of post-viral infection such as varicella. Anti-protein S antibodies are frequently found in the context of varicella, in...
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