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  1. Andy

    Cot Death Genetic Link: Kathleen Folbigg: Mother who served 20 years for killing her four babies pardoned

    From 2001, about another similar case. "Sally Clark was sent to prison two years ago, condemned to life inside for murdering her two babies because - among other evidence - there was only 'one chance in 73 million' of the babies, born a year apart, both dying of natural causes. But the...
  2. Andy

    Review Effects of acceptance and commitment therapy on fatigue for patients with cancer and other chronic health conditions: 2023 Maunick et al

    "Direction for future research The limitations of the current review provide important insights into directions for future research. It is recommended that future trials expand upon the current findings through examining other chronic health condition populations experiencing significant...
  3. Andy

    Review Effects of acceptance and commitment therapy on fatigue for patients with cancer and other chronic health conditions: 2023 Maunick et al

    Abstract Objective Fatigue is significantly more prevalent in the chronically ill compared to healthy individuals. Fatigue is one of the most reported and debilitating symptoms in individuals with chronic health conditions. Despite this, there is limited evidence examining the efficacy of...
  4. Andy

    The cost-effectiveness of an indicated blended care intervention [...] in patients with moderate persistent somatic symptoms 2023 Toonders et al

    "Persistent Somatic Symptoms (PSS) are defined as pain, fatigue, and/or dizziness or a combination of these which last at least several weeks and for which no sufficient explanation can be found after proper medical examination [[1], [2], [3]]. PSS are very common, especially in primary care...
  5. Andy

    The cost-effectiveness of an indicated blended care intervention [...] in patients with moderate persistent somatic symptoms 2023 Toonders et al

    Full title: The cost-effectiveness of an indicated blended care intervention in primary care compared to usual care in patients with moderate persistent somatic symptoms Highlights This is the first cost-effectiveness study on treating patients with moderate PSS. Overall, the intervention is...
  6. Andy

    Effectiveness of exercise training on the dyspnoea of individuals with long COVID: A randomised controlled multicentre trial 2023 Romanet et al

    Highlights After COVID-19 infection, symptoms such as dyspnoea may persist. In respiratory diseases, dyspnoea reduces health-related quality of life. Physiotherapy and rehabilitation are both currently recommended in this context. A 3-month course of exercise training rehabilitation (ETR)...
  7. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 29th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid0FRGweWCJqxVMottRGrjjm6VdZKhb5o9yp3JDGGuS1oKo2EPthDpmVZyAbDz2GWL4l Mastodon: https://med-mastodon.com/@s4me/110490737029157449
  8. Andy

    Protocol MODIFI: protocol for randomised feasibility study of eye-movement desensitisation and reprocessing therapy (EMDR) for [FND] 2023 Cope, Edwards et al

    From Wikipedia, "Eye movement desensitization and reprocessing (EMDR) is a form of psychotherapy devised by Francine Shapiro in the 1980s that was originally designed to alleviate the distress associated with traumatic memories such as post-traumatic stress disorder (PTSD). EMDR involves...
  9. Andy

    Protocol MODIFI: protocol for randomised feasibility study of eye-movement desensitisation and reprocessing therapy (EMDR) for [FND] 2023 Cope, Edwards et al

    "Exclusion criteria ... Predominant diagnosis of chronic fatigue syndrome (comorbid diagnosis is acceptable, as long as FND is the predominant difficulty)."
  10. Andy

    Protocol MODIFI: protocol for randomised feasibility study of eye-movement desensitisation and reprocessing therapy (EMDR) for [FND] 2023 Cope, Edwards et al

    Abstract Introduction Functional neurological disorder (FND) refers to an involuntary loss of control over and/or aberrant perception of the body. Common presenting symptoms are functional (non-epileptic) seizures, and functional motor disorder, for example, walking difficulties, weakness or...
  11. Andy

    Trial Report Improved functional exercise capacity after primary care pulmonary rehabilitation in patients with long COVID (PuRe-COVID): [RCT], 2025, Volckaerts+

    Protocol See next post for the Trial Report Full title: Randomised, controlled, open-label pragmatic trial evaluating changes in functional exercise capacity after primary care PUlmonary REhabilitation in patients with long COVID: protocol of the PuRe-COVID trial in Belgium Introduction Long...
  12. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 29th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid0aye7QNzFyocpSm9aRxow6EBt1AoZMqFopXC9ZGSWHdUocxDShWGSVWke6Qc8GA1sl Mastodon: https://med-mastodon.com/@s4me/110485761412071113
  13. Andy

    Trisha Greenhalgh on ME/CFS and Long Covid

    TG on Twitter. If this succeeds then we might have a better route to complain about doctors who make false statements about ME/CFS on social media. "The UK General Medical Council has adopted an antiquated position on doctors who spread false & misleading information on social media. This...
  14. Andy

    Well-known, famous people with Covid-19 and Long Covid

    Recent update from Dianna Cowern (Physics Girl on YouTube) "It’s been nearly 5 months of being completely bedridden. I’ve made very little progress. I can still barely move, or think or talk. I want to be out in the world living a life. My body hurts. But my heart hurts more. I wish I had a...
  15. Andy

    Research news from Bhupesh Prusty

    This person with LC on Twitter has summarised the recent podcast with Prusty where his theory was discussed.
  16. Andy

    Tryptophan catabolites, inflammation, and insulin resistance as determinants of CFS and affective symptoms in long COVID, 2023, Al-Hakeim, Maes et al

    "Three to four months after the onset of acute COVID-19, a senior psychiatrist assessed the following rating scales: (a) the 12-item Fibro-Fatigue (FF) scale to assess chronic fatigue and fibromyalgia symptoms" "The mean HAMD, HAMA, and FF scores (23.6 ± 5.6; 25.4 ± 8.6; and 30.9 ± 10.1...
  17. Andy

    UK: Alzheimer’s: BLOOD BIOMARKER CHALLENGE – CALL FOR RESEARCH PROPOSALS

    Thought this looked an interesting example of how charities and a national funding agency can collaborate on this sort of project. "We want to produce the clinical and economic data that could help make the case for blood biomarker implementation in a healthcare setting in the UK. Duration: Up...
  18. Andy

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Also available on the APPG website, https://appgme.co.uk/meetings/annual-general-meeting-2023/ and also available via AfME's website, which also has a template email for inviting MPs to the next meeting, https://www.actionforme.org.uk/news/invite-your-mp-to-the-next-appg-on-m.e.-meeting/
  19. Andy

    International: Science for ME social media posts

    May News in Brief posted to Reddit. Copy and paste link below https://www.reddit.com/r/cfs/comments/13xcak2/the_news_in_brief_posts_for_may_2023_which_cover/
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