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From an email. "We are excited to share the findings of a research project led by disabled women and funded by the British Academy and Leverhulme Fund. In 2022 Chronic Illness Inclusion collected testimonies of healthcare encounters from women, including trans women and non-binary people, with...

BACKGROUND:Functional neurological disorder (FND) may commonly co-occur with persistent symptoms following a psychological trauma or physical injury such as concussion. OBJECTIVE:To explore the occurrence of FND in a population with persistent post-concussion symptoms (PPCS) and the...

I think this is a step in the right direction, and I think that fatigability immediately after exertion being labelled as PEM, as per Jason et als PEM assessment tools and which I don't agree with, makes this necessary. I believe that fatigability immediately after exertion in pwME should be...

But I'm sure the 'proper' diagnosis should be "parasitic infection with FND overlay"... ;)

"Woman complained of forgetfulness and depression before doctors pulled out an 8cm roundworm normally found in pythons ... The patient, a 64-year-old woman from south-eastern New South Wales, was first admitted to her local hospital in late January 2021 after suffering three weeks of abdominal...

"Funding: The study was funded by a Medical Research Council Career Development Award to SP [MR/V032771/1]. This paper represents independent research part-funded by the National Institute for Health and Care Research (NIHR) Biomedical Research Centre at South London and Maudsley NHS Foundation...

"Regarding state dissociation, only dissociative amnesia was elevated in the FND group compared to HCs. These results conflict with elevated trait-depersonalisation scores in this sample, and contrast with previous studies reporting elevations in both detachment and compartmentalisation...

Printed papers post for w/c 21st August. Facebook: https://www.facebook.com/sci4me/posts/pfbid0deYnPLV4H2KvyvVUiXBz7kNebTB44g48QXbMwTskEpavZDbYBGwX1x6WgZ1fWJ5ul Mastodon: https://med-mastodon.com/@s4me/110966272726539538

From an email I've received. We’re pleased to invite you to the Infection-Associated Chronic Conditions Patient Advocacy Coalition (IACCPAC) national webinar, a part of the IACCPAC Initiative, led by The Long Covid Alliance, Solve ME/CFS Initiative, COVID-19 Longhauler Advocacy Project...

News in Brief posts for w/c 21st August. Facebook: https://www.facebook.com/sci4me/posts/pfbid02P113D6DsP3xLHS2QVHvxmeWucS3WPYKoUToywCdGMCMAumRSKcdBoe1byy581F71l Mastodon: https://med-mastodon.com/@s4me/110961180525354743

Abstract Post COVID-19 Syndrome (PCS) is the persistence of symptoms after an infection with SARS-CoV-2 in both hospitalized and non-hospitalized COVID-19 survivors. Exercise was proposed as a rehabilitation measure for PCS and early studies focused on patients post-hospital discharge. The...

"This study found that young children who engaged in a variety of appropriate sports, such as exercising at least three times a week, sweating for at least 30 min each time, having a regular exercise habit, and engaging in a variety of sports, were low in fatigue symptoms. In addition...

"Assessment Scale for Symptoms of Fatigue in Children In order to meet the needs of Taiwanese studies and to analyze the research results with international studies, the Chinese version of the assessment scale for CFS in children with the same content was not developed. Instead, this study...

"According to the diagnostic criteria for CFS in children initially published by the International Association for Chronic Fatigue Syndrome in 2005 and republished in 2006, the seven primary symptoms are fatigue, sleep dysfunction, pain (e.g., headaches and muscle and abdominal pain), and...

Abstract Under the impact of the pandemic, electronic device usage has become the primary tool for learning. Due to social distancing restrictions, many sports facilities have been forced to close, resulting in changes in daily activities for preschool children. This research aimed to...

Juvenile fibromyalgia (JFM) is a chronic condition characterized by symptoms of pain and fatigue and is associated with sedentary behavior and functional disability. Adults with fibromyalgia exhibit deficits in physical fitness as evidenced by lower aerobic capacity and physical endurance, but...

Great, thanks. We actually publicly confirmed that figure in our latest newsletter yesterday, see UK: DecodeME recruitment open (online questionnaire, postal spit kit), 12pm 12th Sept 2022

No Conflict of Interest info given, at least in the detail viewable by those without access to the full paper. ETA: It should show that Fiona Finch is, or was, a Lightning Process practitioner, https://web.archive.org/web/20230825114557/https://fionafinchcoaching.com/ And obviously Phil Parker...

It seems to me that all they are demonstrating is that pacing (in the way that pwME use the term) is a useful symptom management strategy, and that patients are accurate judges of their symptoms.

Latest newsletter from DecodeME, "As we approach one year since DecodeME’s full launch, we’d like to update you on how things have been going. Firstly, we can confirm that over 23,000 people have signed up and completed their questionnaire, over 19,000 of whom have also been invited to...